How Thoroughly are Plasma Donors Screened?

Have you ever visited a Plasma collection facility? Have you heard the screaming ads on media of payments of up to $300 USD for 5 Plasma visits? I have been to a few local Plasma collection centers. As well, I am aware of the lack of consistent drug testing and thourough screening of donors.
Patients need the IGg to survive. However the IGg is harvested from millions of donors that (mostly) have underlying addictions, diseases, and blood born contamination that can harm or kill us. A new study points to evidence that patients receiving IGg infusions via subcutaneous AKA SCIG routes are developing new allergies from the IGe in the final Infusion-ready product of Immunogobulins (IGg) derived from DONOR ALLERGIES.

Have you ever visited a Plasma collection facility? Have you heard the screaming ads on media of payments of up to $300 USD for 5 plasma donations? I have been to a few local Plasma collection centers. As well, I am aware of the lack of consistent drug tests and thorough screenings of donors. It is quite scary.

Plasma is the white liquid of blood. Contained within the plasma are B Cells, or White Blood Cells (WBC). The B cells are the bodies immune system. The B and T cells, through a complex interaction, seek out and destroy bacteria, fungi, and viruses and protect the body.

Complex interaction of the human immune system, immunoglobulins seek out and destroy invaders.

There are specialized B cells, called “IMMUNOGLOBULINS”‘which are IGg, IGa, IGm, and IGe. Patients with CVID, or a Primary Immune Deficiency (PID) do not make any, or enough, IGG and are also deficient in either IGa or IGm (IGG is the main immunoglobulin derived from donor plasma). In order to survive, a patient wit CVID or a PID must infuse donor IGg, weekly via SCIG. Or every 3-4 weeks via IVIG for the rest of their lives. IGg cells die rather quickly, and patients must continue infusing for protection, and survival. The “normal” patients body will quickly replenish the IGG (plasma) donated or needed.

The lack of thorough screening of donors, leaves patients who rely on IGG in a dangerous and deadly game of roulette. Especially for myself, as I am on the receiving end of the IGg that is derived from the 1000s-10,000s donor IGg in one month alone.

INSIDE VIEW Of the machine that separates the red blood cells from the plasma (which is yellowish) and returns the red blood cells to the donor. The Plasma is separated and combined with tens of thousands of other donors plasma. The result is what are called: IMMUNOGLOBULINS (IGg, and smaller amounts of IGa AND IGe).

I’ve purposely avoided the Manufacturers product that has a lack of quality control of the individual Plasma donors.

Until a facility, recently opened in my state which is the manufacturer of my product. Last year, prior to the facility opening, I voiced my concerns, about the lack of donor screening. I was reassured the manufacturer (of my product) would have stringent guidelines on donor policies. To my utter amazement, shock and horror. A recent ad on Craigslist appeared, using the same schemes to get donors in the door.

Patients Concerns: Safety Protocol of Plasma Donors are laxed, or non-existent.

One can just imagine the blood born illnesses and diseases that can slip through the Plasma to IGg process. Ultimately, patients on the receiving end are really “rolling the dice”. We need the IGg to survive, however the IGg is harvested from millions of donors that (mostly, but not all) have underlying addictions, diseases, and blood born contamination that can harm or kill us.

As part of the extraction of Immunoglobulins (IGg; IGe), from the donor plasma, IGg has IGe, which is also infused into the patient. As a byproduct of the IGg Infusion, IGe is also infused by SCIG. IGe cells are the “cells” that contain individual donor ALLERGIES.
Patients, once with no history of specific and severe allergies, are now developing peanut and grass allergies (Zdziarski, P., et. al., 2017).

Hmm, if it’s that easy to develop new allergies from a byproduct of donor IGg, what else can the patient be contaminated with? A serious issue, not likely to be addressed by the manufacturers.

Be aware, if you do infuse biologicals via subcutaneous (SCIG) and develop a new allergy, the evidence points to lack of donor screening, and infusions of IGg.

https://aacijournal.biomedcentral.com/articles/10.1186/s13223-017-0213-x

Passive blood anaphylaxis: subcutaneous immunoglobulins are a cause of ongoing passive anaphylactic reaction. Zdziarski, P., Gamian A., Majda J., Korzeniowska-Kowal A. (2017). Allergy, Asthma & Clinical Immunology 13:41. Retrieved 11/08/17: https://aacijournal.biomedcentral.com/articles/10.1186/s13223-017-0213-x

Every Patient Needs to Know: Patient Privacy is Profit. The Red Flags of Betrayal

Would you give a stranger your address? What about your Social Security Number? Probably not. Why are you giving away your Private Health Information? Chronically Ill patients are Cash in the bank. READ ON; Every patient with a chronic illness needs to know the dangers of volunteering your medical information. It’s more than a bank account they steal, it’s your life, literally. Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients. the Vertice (of the triangle) preys on the desperation of the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded manner. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the individual with a rare and terminal disease. They methodically extract the information- they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t ADMINISTER and stalk groups! The same for ⬇️.

WHAT? Yes, what you viewed is not a cruel joke. Read On:

Add the following to your toolbox of self-advocacy:
Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients.

Technically, HIPPAs Privacy Rule, created national standards for protection of Individually Identifiable Health Information Health(PHI). The Security’s Rule is established as a national set of security standards in how records are stored and/or transferred, the Electronic Protected Health Information (e-PHI). Which in theory HIPPA should protect patients from sharing any of their personally identifiable records being released. In THEORY.

HIPPA specifically states that health information cannot be released without written consent to a physician to use or share your information for marketing or advertising purposes. The catch?
How are these entities able to trade/sell your names/diagnosis/treatments with the pharmaceutical companies that manufacture your life sustaining meds for a boatload of money? Worse? They get WEALTHY & POWERFUL. They own a good part of WASHINGTON (vertices 3).

It’s VERY EASY. They self proclaim that they are not a mandated “COVERED ENTITY” for HIPPA Compliance. Easy enough, and that is what they do. Under the e-PHI/PHI, if a patient volunteers verbally, or written form health related information (DX,MEDS, DOCS, NAME, Address)…..that is a-o-k. Not a violation of HIPPA. 1) They self proclaim they are not a “covered entity” & therefore not held to HIPPA Law. 2) They let the patient volunteer their private health information (under false pretenses) and a lot of psychology.
WHY are so many vulnerable patients willing do this? 3)As stated, they use methodical pre-mediated psychological mind games. In this case, it’s called the Reprococity Norm or even, The Foot in the Door. Simple speak: An expectation that if they do something for you, you will do something for them. In this case, (there are several examples) they buy you lunch at a meeting, you complete the survey or paperwork with private and medical information. Foot in the door is basically the same, they do something nice for you and expect a larger request from them to be honored by the patient.

4)Back to the information gathered: The PHI, patient information, medical diagnosis, treatment, care, life-sustaining medications, physicians, records, labs, are obtained in a sadistic way.
Albeit, not illegal, unless the office of Civil Affairs, Attorney Generals, and the IRS decide to audit their real activities. Since that’s not probable the Vertice (of the triangle) preys on desperation the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded way. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the person with a rare and terminal disease. They methodically extract the information they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t administer and stalk groups! Posing as Patients, because they do. The same for ⬇️.

5) The second vertices throws in the statistical analysis/manufacturing/economics from the information gathered by vertices 1. If your following me, it’s the pharmaceutical industries that manufacture the life saving medications of the patient. The millions (or trillions) of tax-free dollars and/or taxable deductions, depending on which one gets the cash and which one “donates” occurs.

6. Finally, can’t fool you here ;( throwing (LOTS) of money at politicians, to write legislation that continues this cycle. Only now….we are heading into a viscous era with the development biosimilars and stem cell development and manufacturing. Have to applaud the 700+ organizations that supported CURES, NOT, and the complete lax in FDA oversight.

How are they doing this?
Easily, the in-between gains the trust (released from any HIPPA violation) of chronically ill patients, at the same time being protected by a 501(c) status. Therefore, the “gifts” are tax-free to boot. We don’t really KNOW how much cash is exchanged, millions, trillions? IT SURE IS TAX FREE.

Patients are not aware of the strategies used. Many desperate patients prefer to look the other way (see psychological examples), plain don’t know, or more than likely truly believe in the “only” agency that “advocates” for them (*Psychological explanations: Conformity; Social Loafing, Deindividuation, Group Polarization, In group Bias, Status Quo and Status Quo Bias).
>Until the day comes and their no longer profitable to the triangle of the powers. That in fact, alienate them. Then they die. No questions asked. New patients are diagnosed. Wash. Rinse. Repeat.
***The cycle continues, and has, for at least 3 decades, possibly longer.

**What you can do to Protect Yourself (Advocate)
Recognize the red flags. Understand the purpose. Regain your HIPPA rights. You, WE, are not someone’s profit. WE are people with many diagnoses’. We live our battles everyday, we are NOT their blood money.

Rescind all previous permissions given for ANY records, paper and on any electronic database. Demand immediate deletion and shredding. Certified mail, fax, email. Are you registered with the NIH? Rethink that, as it stands it’s not a wise decision to have your healthcare records in a governmental agency, with # Cures now law.
Re-evaluate the rules you went through to become a member of any group, NFP or Social Media, ANY one. Never put in writing or verbally the specific private health related information mentioned above. On paper, mislead, or put NA for dx, doctors, meds. Don’t open ANY email from these groups– your email is traceable down to the GPS. Review the ways blogged here. Review the video above for legitimate organization features (Instagram pipunited). Research the org /agency of choice, have they really supported their patient population with legislation? Review their lobbying and bills opposed or supported. Stay tuned, I will address details in-depth to help you decide by advocating who really supports the Patients in your field of Chronic Illness.

I know it’s not believed as the truth, but every one of the patients they use to increase their bank accounts, should be aware of how much power they have given these people over their own mortality.

√I don’t know about you, but my physical struggling will not be capitalized on for greed.

Cliffhanger: There is a major 4th “vertices” to add to this “TRIOLOGY”. This entity and the “Profit NOT Patients”will be made public at a later date. Onward to our one Year Anniversary celebration!
Make sure to subscribe,you don’t want to miss it!

~~I hope this helps someone.
❤️PIPPY

Knowledge Empowers

Chronic Illness Patients and No Options to Survive: CBO of Senate #AHCA Defi

The CBO does not include the millions of high-cost or pre-existing conditions as the uninsurable forecast of 23M..
The CBO states, “that the funding available to help provide coverage for those high-cost services would be insufficient in some cases even if a special program was designed for that purpose. Therefore, the agencies expect that insurance coverage for high-cost services would become extremely expensive in those areas, as it was in some places before the enactment of the ACA in 2010. A state is required to have mechanisms to reduce the chance of such outcomes as part of its waiver program under current law, but would not be under this legislation.”….AHCA gives states that accept waivers 2 Billion Dollars. The CBO quotes,”…states can use the funds for purposes other than health care”. CUTTING EHBS includes non-treatment of chronic illness and more

Bear with me on this complicated and urgent subject. It is important to understand the #AHCA contents, key concepts, and how it will cause mass death. This is factual. PLease refer to the documents for the specific legislation, also linked below. This legislation will affect you and your loved ones. It is worth reading as I break it down to basic understanding of the consequences of AHCA that is in process of becoming law THIS WEEK.

The Senates #AHCA, as suspected causes far more damage than the Congressional #AHCA Bill, to EVERY American.

~~~Senate released the “HR1628 Better Care Reconciliation Act of 2017” {BCRA}, also called #trumpcare or the #AHCA, on Friday, 06/23/17. The CBO analysis released, 06/26/17. The horror of this legislation, it may become law by midweek.
What is the CBO?

The Congressional Budget Office, known as the “CBO” reports as a nonpartisan entity that provides long-term statistical data analysis for “congress”. Statistical data reports include cost benefits, analysis, estimates and deficits that range from agriculture, health care, taxes, veterans and more. Final legislation is typically driven by the CBO forecast.

CBOs Influence on #AHCA
**In the case of the HR1628 now known as the BCRA (#AHCA); the CBO Report analyzes past healthcare data, projecting current, proposed legislation and the financial overall (not inclusive) impact.
It seems that the CBO report is heavily weighted with many proposed bills, that will have any impact on the financial economy. Much like a home inspection is to a home seller. On a larger scale, that potentially affects significant population bases within the United States.

Summary of CBO (PRE-EXISTING CONDITIONS)

CBO of the BCRA
In a nutshell the CBO briefly addresses pre-existing, chronic illness,high-cost patients and treatments, or those that would use the protections of the Essential Healthcare Benefits (EHBs).

*However, the CBO does not include the millions of high-cost or pre-existing conditions as the uninsurables.
The CBO states, “that the funding available to help provide coverage for those high-cost services would be insufficient in some cases even if a special program was designed for that purpose. Therefore, the agencies expect that insurance coverage for high-cost services would become extremely expensive in those areas, as it was in some places before the enactment of the ACA in 2010. A state is required to have mechanisms to cut the chance of such outcomes as part of its waiver program under current law, but would not be under this legislation.”
No mention of how, or if, the chronically ill can or will be insurable or have access to care.Stunning. Petrifying.
CBO OF

CBO Reveals NO SOLUTION FOR PRE EXISTING CONDITIONS OR TREATMENTS “NO PROTECTIONS UNDER #AHCA”

As discussed EHBs, will be annihilated. If you haven’t already reviewed what cuts will happen when EHBs get tossed. Please become familiar ASAP, as these cuts are diabolical.
HERE! HERE! HERE! HERE!

Hits home with a lot of persons who were born with defective genes. Leaving our children behind as orphans is a real fear with #AHCA

CBO FACT 2:
The CBO data omitted
millions more as uninsurable by dismissing chronic illnesses and treatment in the last analysis. Perhaps, they have accepted the idea of the chronic illness patients fate? WE HAVE NOT.

CBO CONCLUDES: State Bribery to End EHBs

The last CBO result concludes 23 Million will be uninsured. As stated above, the last numbers are perhaps double, due to unknown omission of Pre-Existing Conditions. The data seems flawed. **Of significance #BCHA or #AHCA gives states that accept waivers 2 Billion Dollars. The CBO quotes,”…states can use the funds for purposes other than health care”. Reportedly, taking effect July 2017-July 2019.

The Catch

Keep in mind, when accepting waivers, states will drop EHBs, and other current health care protections. The ending of EHBs means treatment for chronic conditions, prescriptions, maternity, basic blood work, and more are also no longer covered by insurance.

States receive “pass thru funds” of 2 Billion to end EHBs in 17-19

Senate Legislation #AHCA Confirms: $2 BILLION for Pre-Meditated Murder:
Page 136

Senate #AHCA Bribes states with 2 Billion to drop or change EHBs 2017-2019

Republican Tactic:

*Smokescreen-as usual. Do not divert your attention for ANYTHING. Healthcare and lives are at stake.

*The CBO score gives Mitch McConnell TWO HUNDRED BILLION “extra cash” (by not including the chronic illness patients in their last data) to bribe the few Republicans to flip their moderate or potential no to a yes vote. It happened with the congress vote, and it will happen again.

*Ironically, McConnell (R) KY: His life was saved from polio, by government funding for his treatment and rehabilitation. He is one of the MAIN leaders of this death pact, 2nd to Paul Ryan.

.
Mitch McConnell, Ringleader of the Death Spiral: Polio as a child, the government paid for his treatment and rehabilitation. His heart is damaged from the Polio, as killing millions of Americans he has no heart

More Cuts
There are MANY unjust and inhumane aspects of the BCRA (HR1628, #AHCA). Senate is determined to pass this atrocity as law, as I write this. The vast cuts range from qualified health plans (i.e., bare bone coverage) insane Medicaid cuts, employer-provided healthcare cuts, 58% actuaries (will define actuaries later), annual and lifetime limits, 5 times higher premiums for ages above 50, unlimited and uncapped premiums, deductibles and out-of-pocket expenses, elimination of cost-sharing, and the list goes on.

Fact: The Republican Party: Profit & Power: NOT PATIENTS

Kicking elderly out of nursing homes, children from Medicaid, disabled from access to medical care equals the exact amount, 33 Billion in TAX cuts for the wealthy

WHAT CAN YOU DO NOW?
We are running out of time, call, email, fax. Most importantly: Talk to your neighbor, family, friends, tell the, the facts. They will say, “I heard the opposite on the news, radio, internet, newspaper”. Redirect them to the facts. All legislation is on this site, and original sources cited. WORD Of MOUTH, In person, on the Phone (not texting). Sadly the technological world makes reality seem distant people need to actually understand facts, they do not understand the size as hitting them, until it’s to late. Again here are the contacts;

Call these Republican Staffers Right Away stop Senates #AHCA

CBO ANALYSIS OF SENATE AHCA BILL: Here

https://primaryimmunepatientsunited.com/cbo-analysis-senate-survival/
Don’t Be Fooled, Money Talks. Some of the Agencies, once the truth hit, have back paddled. BE SMART!
    REFLECTING
    Since trumps election I have continually pointed out the significance of #Cures, ACA, AHCA, EHBs, Here I Explain How #Cures led the groundwork for the current health-care crises. and more.

    While large organizations denied these facts to Chronic Illness Patients. See: HERE Am I surprised?
    After viewing republicans DENY cuts to Medicaid publicly; knowing they just sentenced children and the elderly to death. Yes, I believe it now.

    Sadly, after putting many of these pieces together and following the trail of money. I am not surprised by the actions of greed. An atrocity. They are all committed to Politics & Profit; not Patients. While innocent patients, who would do anything not to be sick, suffer. Our voices unheard.

cures-ugly-truth
Cures and the Ugly Truth
  • Status Quo and Status Quo Bias:

    The absolute definition of STATUS QUO; Patients that BELIEVE the current health care situation is *better than any change, therefore they refuse to accept truth, or facts–Even-when their life depends upon fact. They refuse to accept an alternative, the facts. If one attempts to present the facts, and disrupt their current world of life with the “status-quo”; they in fact, respond with vengeance, down playing and ostracize. This defines the status quo bias.

    Here we are, the week that we may see the end to life as we knew it on s federal level…AS A LAW. Continue reading “Chronic Illness Patients and No Options to Survive: CBO of Senate #AHCA Defi”

  • Cost Sharing Defined: Who Gets Left Behind

    Cost sharing and medicare

    Medicare Patients & the catch 22 if you have a chronic illness
    Define Cost Sharing: Because BIOLOGICS (blood products) are NOT generics

    CLICK HERE FOR MORE INFORMATION

    Public Policy Report 4_17

    Public_policy_report_4_17

    “One issue that particularly sunk Ryan’s numbers was health care, and we continue to find less and less resistance to just keeping the Affordable Care Act. We find 47% support for it on this poll, but more notable than that we find the level of opposition to it down to only 31%. Even among Republican voters there’s now barely a majority- 51%- that expresses opposition to the ACA. Just 30% of voters want to repeal it, compared to 62% who say the best path forward is to keep what works in it and fix what doesn’t.

    Courtesy: Public Policy Polling