Call your Congress Person NOW! NO TO AHCA-NOW EXCLUDES PREEXISTING CONDITIONS & MENTAL

CALL YOUR REP There are quite a few resources aimed at helping citizens have their voice heard. If you cannot get out and March, or gather at your representatives chambers. This convenient  app, and/or link in a browser, provides you with your local, state, and federal reps! Easy-Peasy! Scroll down a bit, and you can […]

CALL YOUR REP  callyourrep.co  locate your CONGRESS person, and CALL NOW.

Tell them NO on the AHCA: Overnight GOP added excluding pre existing conditions and no mental or psychological medical. Congress voted this morning and approved eliminating all basic healthcare services.

They are still in debate, Call now. Congress has absolutely no idea what American citizens actually live with regarding insurance, they are so out of touch.

LIVE FEED: http://houselive.gov/

they just left for recess CALL NOW

The below post is more detailed about reaching your State Reps, if needed.

GOD BLESS AMERICA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

There are quite a few resources aimed at helping citizens have their voice heard. If you cannot get out and March, or gather at your representatives chambers. This convenient  app, and/or link in a browser, provides you with your local, state, and federal reps! Easy-Peasy! Scroll down a bit, and you can even have custom “scripts” and data, detailed for your area of concern.

Direct Link: https://callyourrep.co/

Emily Ellsworth describes how to effectively lobby your congress person:

Understand why phone calls and in-person meetings are more effective

Because emails and other written correspondence is so easily batched by computer programs, a hundred or a thousand emails on a subject both require the same amount of effort by staff. Phone calls are more effective because they require a staffer to be on the phone with someone and respond to questions immediately.

Calling your representative’s DC office might feel more natural because they are the office primarily responsible for managing legislation. However, the state office staffers are usually from your state and part of the community you live in—they are truly local. Also, state office numbers are less likely to be busy or have a long hold. Significant volumes of calls in a state office also require coordination by the DC and district office staff and get noticed right away.

From time to time, I had large groups of people come into our state office by appointment and share their stories. This was particularly effective with immigration and climate change groups who brought in experts to answer questions. They gave perspective and knowledge we would not have had otherwise. It is easy to get an appointment with a local staffer or a DC staffer, and these relationships pay off.

For those who are unable to make phone calls or in-person visits for any reason, that’s okay. It doesn’t mean your voice goes unheard. Most constituents have never contacted their representative, so you’re miles ahead of your neighbors. Sending emails and letters as part of a coordinated effort make a difference and send a message.

Adapted from: http://theslot.jezebel.com/how-to-effectively-lobby-your-congressperson-1788958124

Several Key Organizations are Working Together, to FIX Cures. Individuals: Take Action Now.

Notice: Do not be fooled as now, specific supporters are now back peddling their way out of their support of Cures, a little late, heh? Excuses abound. Mainly, “Congress Fooled Us, and at the Last Minute Changed the Legislation“.
NO: THAT IS A LIE

  • July 2016 Revision of CURES: Page 295:
  • As mentioned in the earlier blog post, key organizations, manufactures, and others are making an active effort to Keep Infusions in the Home, and amend  Cures. Key Organizations include,  Cardiac Infusion Centers, John Hopkins, and the support continues to grow. BUT, be wise. There is a REASON for this mentality, of thought and actions.

    Upon reviewing current “Action Alerts” that tell, interested parties of needed support. It appears the link, is “DEAD”,  as linked by one particular group that supports the coalition.

    Since, time is of the essence, to let your voice be heard, I am REPOSTING the direct link:

    http://www.keepmyinfusioncareathome.org/take-action/

    To Date, a few organizations, agencies, manufacturers, specialty pharmacies, and other interested parties are in SUPPORT and WORKING TOGETHER for the United Good of the Patients, and their health.

    primaryimmunepatientsunited.com
    Don’t Be Fooled, Money Talks. Some of the Agencies, once the truth hit, have back peddled. BE SMART!

    Notice: Do not be fooled as now, specific supporters are now back peddling their way out of their support. Excuses abound. Mainly, “Congress Fooled Us, and at the Last Minute Changed the Legislation“.
    NO: THAT IS A LIE:

  • July 2016 Revision of CURES: Page 295:
    July 2016 Legislation Supports Facts of the Medicare Cuts

    The Few Organizations, Manufacturers, and Senators who OPPOSED #Cures. A few can be perceived as, “mitigating damages of their peers ($$$)“. In order to not “alarm” patients. Really. That is how they think, what they say,
    and their actions speak louder than their “words”. IF you are not desperate to belong to a community that basis their revenue on social psychology tactics, plays on the insecurities of many persons suffering with long term and chronic illnesses, and uses hope of belonging to a very desperate, and rare population base. Your in the right place.
    It is an abuse of the very population they purport to advocate. Again, think smart.

     

     

    Attribution: The 700 Groups that Supported the 21st Century Cures Act:

    July 2016 Legislation: http://docs.house.gov/billsthisweek/20150706/CPRT-114-HPRT-RU00-HR6.pdf

  • Decephiring #Cures 2: A Formal Summary, and Solution. Take Action.

    Keep Infusions at Home, take action! Summary, proposed solutions, and the Appeal of the ACA by Senate.

    The National Home Infusion Association (NHIA), a patient focused organization, disagreed with #Cures Legislation from conception.  The Summary of the effect of Cures, released 01/11/17, is below. The NHIA has proposed a method to “fix” the current #Cures law. The NHIA has launched a campaign to KEEP INFUSIONS AT HOME. Also, a comprehensive website developed for the coalition to fix #Cures (known as the ASP, to us) is located at (bookmark and save the below link):

    REIMBURSEMENT & PART B DME COVERAGE OF HOME INFUSION SERVICES AND ENSURE A SERVICES AND SUPPLIES PAYMENT FOR PART D INFUSION DRUGS

    The NHIA has Launched Sign-On Coalition Letter to Fix ASP Reimbursement Gaps, and are supported by a variety of organizations. I urge patients, caregiver, and any interested party, to sign, advocate, and become involved. The deadline to sign the Coalition against ASP is January 24, 2017. FInd the link to sign below:

    Take Action

    For Individuals: Help us fix a law that is changing life for patients across America.

    The following is a Summary, from the NHIA about how Cures, will affect the population of PI patients, that infuse via SCIG:

    img_2919

    .

    The following is published on the NHIAs website. For ease of understanding, Specialty Pharmacy News,  spoke to NHIA about the ASP Reimbursement (Cures, Sections 5004; 5012) and summarizes how Cures will affect patients who infuse SCIG:

    NHIA Launches Sign-On Coalition Letter to Fix ASP Reimbursement Gap:

     

    This blog post  identifies how to understand and “fix” the #cures act. Remember, when CMS (Medicare) changes policies, health insurance plans ALL follow suit.

    ⌛️Of recent significance, is the Approval by Senate, on 1/11/17, to repeal ACA. The repeal of the ACA is a certainty that our country, and the health of our citizens are moving in the wrong direction. The effects of  repealing  ACA (Obama care) are significant, specifically those with chronic and rare diseases. It IS  important that each citizen, patient, and loved one, who values their life;  Keep abreast of the current political changes that are being made in Washington. It may be easier, to ignore, these travesties. Or believe hearsay, propaganda and the like, which is EXACTLY how the United States has seen the very quick decline with our economics, our political leaders, our health care situation, and every single aspect since 11//2016. PROPAGANDA.  Ignoring these changes, will certainly make living, a healthy life, harder for ourselves, and our loved ones. We, as a nation, and a community, must continue to educate one another. Keep Informed and TAKE ACTION.

    The consequences of repealing the ACA, are disastrous for ALL citizens. Contrary, to what many felt an unnecessary financial burden. The ACA provided protection for the citizen. Once, the repeal of the ACA, passes Congress: the ACA will almost no longer exist. There are many rumors flying around, and most “informational” support groups, are banning the patients from speaking.   One thing is certain, and the law,  Senate approved the repeal on 01/11/17, and the Repeal was approved by a simple majority vote. Once the House approves the measure, rumored as early as next week, a repeal legislation will be drafted, both Houses vote on it, its repeal passes-or fails-by simple majority vote, and onto trump. However, this repeal  of ACA does have limitations.

    ***Update: The ACA Repeal was approved by the Congress on 01/13/17.

    ?There has been a new BILL INTRODUCED BY Sen. TED CRUZ (R-TX) on 01/12/16 to DISMANTLE the ACA entirely, co-sponsored by Sen. Lee, Mike (R-UT), Sen. Rubio, Marco (R-Fl), and Sen. Paul, Rand (R-KY):  S.106

    “A bill to repeal the Patient Protection and Affordable Care Act and the Health Care and Education Reconciliation Act of 2010 entirely”

    Click here for updates: https://www.congress.gov/bill/115th-congress/senate-bill/106/all-info?r=12#cosponsors

    Voice your criticisms NOW to HALT the complete demolition of the ACA:Obama care. Preexisting conditions, life-time maximums, unlimited OOPs determined by Insurers, and UNINSURABLE Status will become effective.

     

     

     

     

    What can we expect?

    WHEN the ACA DIES, so do *most-ALL if (S. 106 passes) of the provisions set within the ACA that  protect the patient. Potentially, this blog may address the ACA repeal. Ultimately, contacting your state legislature is the only option, that is absolutely needed at this moment.

    Congress.gov is a resource to use to gauge and check the current bills and legislation activities.  It IS a wise idea that one contact via email, phone, or snail mail their political leaders of your state, and let them hear your voice, opinions, and stories.

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

    Sources and Attribution:
    http://docs.house.gov/billsthisweek/20150706/CPRT-114-HPRT-RU00-HR6.pdf

    Over 700 Groups Stand Behind #Cures2015: https://energycommerce.house.gov/news/press-release/over-700-groups-stand-behind-cures2015/

    Having any Problems with a Specialty Pharmacy (or otherwise) and on Medicare? Are they demanding payment, supplies, IGG, having you sign a form quaranteeing payment or anything related to an SCIG Infusion? Re: immunoglobulin replacement therapy (IGG) via subcutaneous (SCIG)

    difficulties related to billing, supplies, medications, or more, in regard to replacement immunoglobulin therapy

    Report any problems if you are On Medicare with a rare disease, need immunoglobulin replacement therapy, igg via subcutaneous (scig)
    Report any problems if you are On Medicare with a rare disease, need immunoglobulin replacement therapy, igg via subcutaneous (scig) click on the link below ⬇️⬇️

    If experiencing any difficulties related to billing, supplies, medications, or more, in regard to replacement immunoglobulin therapy. Report the difficulty below

    Source: Having any Problems with a Specialty Pharmacy (or otherwise)? With demand of payment, supplies, IGG, or anything related to an SCIG Infusion?

    Update on CMS re: DME (Infusion Pumps, supplies) per #cures

    I Published the information, regarding Policy Article A52507 in reference to CMS billing, codes, payment criteria, and general information of Infusion related DMEs and medication on 12/28/16. Since…

    Source: Update on CMS re: DME (Infusion Pumps, supplies) per #cures

    Sources and Attribution:
    http://docs.house.gov/billsthisweek/20150706/CPRT-114-HPRT-RU00-HR6.pdf

    Over 700 Groups Stand Behind #Cures2015: https://energycommerce.house.gov/news/press-release/over-700-groups-stand-behind-cures2015/