Cunningham-Rundles-2012

An expert in the field of Common Variable Immune Deficiency, Cunningham-Rundles. Published “The Many Faces of Common Variable Immune Deficiency” in 2012. Research and education of common variable immune deficiency. The unknown, and known. Interesting and knowledgeable as always, as she is a leading expert in the field of Primary Immune Deficiency.

The many faces of common variable immunodeficiency

http://asheducationbook.hematologylibrary.org/content/2012/1/301.full

The Many Faces of Common Variable Immune Deficiency. (Cunningham-Rundles, C.). American Society Of Hematology. Volume (2012/12/8). Retrieved September 17, 2017 from http://asheducationbook.hematologylibrary.org/content/2012/1/301.full
For personal use only.

IN 4 Days: Skin on Elbow and Hand was Dead

In 4 days what first looked like a minor scrape, was a crater, quadrupled in size, the flesh from elbow and hand dead. The bacteria entered directly through skin, no entrance via cut, bug bite, scratch and spread rapidly

[contact-field label='Name' type='name' required='true'/][contact-field label='Email' type='email' required='true'/][contact-field label='Website' type='url'/][contact-field label='”Message”' type='”</p>' <p><strong>UPDATED /> What you see below may not be cellulitis. As I’ve been told by a trusted specialist that’s cellulitis does not continue to re occur in the same place. I have battled this excruciating condition since late May. I do not know what it is, it continues to reappear in the same locations, extremely painful, and as you can see is very rapid. I’ve been on several antibiotics since May and I continue to get these /> If anyone has experienced such, please help me to figure this out.</p> <p>As a person with a Primary Immune (PI)deficiency I am pretty “anal” about /> A germapobe, I am. Long before the PI diagnosis: I go out of my way to avoid any contaminates. Which is why the following story has me questioning: Where and how did I contract a skin eating bacteria.</p> <p>Four days ago, I mentioned to my son, “my elbow was really hurting”. A weird statement for me. As I endure a lot more pain than what appeared As a scrape on my elbow. </p> <p>The pain had bothered me for a while, I ignored it. When leaning on a hard surface I cradled my elbow with my palm. My son, had mentioned, “Yes, the small scrapes seem to hurt the most”. I agreed. A bit later, he said, “Mom, that does not look like a scrape”. </p> <p>Although, it was a small red area on the bony part of my elbow, I was unable to see it. So, he snapped a picture. Enlarging the pictures he said, “this looks like pieces of glass”. Indeed, I surprised myself how odd this “scratch” appeared. Maybe a form of psoriasis or /> [caption id='attachment_9271' align='aligncenter' width='768'/] That’s one weird scratch[/caption]


I then notice a slight irritation on my palm and finger. Weird. I applied some topical medication, and bandaged my elbow and hand and went to bed.

Day 2:
Removing the bandages. My little photographer was the first to see if this, “scrape” was improving. I was curious if it was at least scabbing. As the pain was pretty intense. The photos show no scabbing, but indentations. My concern began to mount. As my IGg levels are decreasing, I’m very susceptible to all bacteria, viruses, fungus. I’ve limited all activities, realizing that I am prone to serious infections. No scabbing, and complete change in appearance, concerns me.

The once broken glass appearance was now a sunken indentation.

The life-long patient that I am, I began researching what the heck this was. My husband, just realizing the situation, thought a possible spider bite. We ran through so many scenarios. He, and my kids suggested to go to the doctor. Absolutely NOT. As a chronic patient, going to the doctor exposes me to many more germs. As well, I have , learned how to take care of various illnesses. It’s exhausting explaining CVID to the medical field. Risking get very ill, and going in for a strange “painful-scrape-turned-glass-turned-crater” was not what I had the energy for. After researching for hours on dermatology, skin infections, insect or spider bites. There was not any connection.

Day 3:
The bandage pulled off, and the look on my child’s face was worrisome. I asked, really hoping, “does it look better”? The reply, “Mom go wash it off, looks like some cream is on it”
I did. I could see some type of transparent film covering the area. Thinking it was padding from the gauze. Ummmm, no. It was the skin.

Day 4: The Skin sloughing grew larger, peeling off layers as I took off the protective covering. I decided, I need medical advice.

*The Diagnosis: Cellulitis
*My Case: It is not unusual that I have complications that are not technically diagnosable. Again, I have a rare disease, and research is limited. My manifestations are certainly a concern. Although, typically persons contract Cellultis on their feet or legs. The bacteria travel through an open cut or bite. I had neither. Especially, the palm of my hand. The bacteria were able to infiltrate the layers of my skin without an actual entry point, as those with cellulitis contract it.
*Complications: The bacteria may travel to lymph nodes and into the bloodstream. This can lead to a blood infection or permanently damage lymph vessels, which are part of your immune system. Other complications can also develop. – See more at: https://www.aad.org/public/diseases/rashes/cellulitis#sthash.f0BhLYBR.dpuf
Causes: cellulitis is caused by two types of bacteria:
Streptococcus and staphylococcus
*Staphylococcus aureus is the most dangerous of all the many common Staphylococcus bacteria.
Causing the antibiotic resistant MRSA and Sepsis.
mrsa poster

Lesson Learned: For myself, family and others. Staph naturally lives in most people’s nose, and other body parts. If you blow your nose, etc., and touch any open access point (cut, blister, dry skin). The staph is then introduced into your body, potentially creating the above case. Keep all open wounds covered with an antibiotic cream and bandaged until scabbed over. Wash your hands frequently!
Don’t Open the Door to Germs

Tomorrow is Day 5: I have begun the antibiotic regime, and care of the site. If all goes well, This crater will heal. If it does not I will have intravenous antibiotics.

What are Essential Health Care Benefits, Pre Existing Conditions and What Happened?

Have you heard terms, regarding TRUMPCARE (AHCA) and your not familiar with them? Specific documents related to #AHCA are here.

Have you heard terms, about TRUMPCARE (AHCA) and you’re not familiar with them? Would you like to view specific and factual legislation?

The drop down menu titled “DOCUMENTS” is where you can find the specific information.
Updated:
06/23/17: Senate Healthcare Bill #AHCA
Patient Protections Affordable Care Act (PG 163 ACA Coverages of Essential Health Benefits-EHBs)
CMS Financial Impact of the #AHCA 2017 (06/13/17)
Full #AHCA Bill Passed By Congress
Congress that voted on #AHCA results,

ESSENTIAL HEALTH BENEFITS (EHBs), Pre-Existing Conditions (Non inclusive to date), Patient Affordability and Protections Act (ACA), the CBO analysis MacArthurs Amendment and Meadows Amendments.
Given the timelines of various factors that have landed the USA in the healthcare crisis. One may want to read through the blog. It’s tedious and more information that I can sum up in one blog post. If you scroll through the blog, you will also find other important And key documents, that have not been added. Which will help you to understand the current crisis in healthcare.

PIs In the Media

PI mentions in the media

“Made for Hollywood” films do not necessarily portray the accuracy of a Primary Immune Deficiency. Any form of awareness, is awareness. Once curiosity peeks, information is easier to clarify the facts to the public.

Movies/Films:

“The Boy in the Plastic Bubble” (1976).

Everything, Everything (2017).

Television Series:

House

Seinfeld

PBS

📖 Reading/
Fiction:

Everything, Everything (Yoon, Nicola) 09/2015