The National Home Infusion Association (NHIA), a patient focused organization, disagreed with #Cures Legislation from conception. The Summary of the effect of Cures, released 01/11/17, is below. The NHIA has proposed a method to “fix” the current #Cures law. The NHIA has launched a campaign to KEEP INFUSIONS AT HOME. Also, a comprehensive website developed for the coalition to fix #Cures (known as the ASP, to us) is located at (bookmark and save the below link):
The NHIA has Launched Sign-On Coalition Letter to Fix ASP Reimbursement Gaps, and are supported by a variety of organizations. I urge patients, caregiver, and any interested party, to sign, advocate, and become involved. The deadline to sign the Coalition against ASP is January 24, 2017. FInd the link to sign below:
The following is a Summary, from the NHIA about how Cures, will affect the population of PI patients, that infuse via SCIG:
The following is published on the NHIAs website. For ease of understanding, Specialty Pharmacy News, spoke to NHIA about the ASP Reimbursement (Cures, Sections 5004; 5012) and summarizes how Cures will affect patients who infuse SCIG:
NHIA Launches Sign-On Coalition Letter to Fix ASP Reimbursement Gap:
This blog post identifies how to understand and “fix” the #cures act. Remember, when CMS (Medicare) changes policies, health insurance plans ALL follow suit.
⌛️Of recent significance, is the Approval by Senate, on 1/11/17, to repeal ACA. The repeal of the ACA is a certainty that our country, and the health of our citizens are moving in the wrong direction. The effects of repealing ACA (Obama care) are significant, specifically those with chronic and rare diseases. It IS important that each citizen, patient, and loved one, who values their life; Keep abreast of the current political changes that are being made in Washington. It may be easier, to ignore, these travesties. Or believe hearsay, propaganda and the like, which is EXACTLY how the United States has seen the very quick decline with our economics, our political leaders, our health care situation, and every single aspect since 11//2016. PROPAGANDA. Ignoring these changes, will certainly make living, a healthy life, harder for ourselves, and our loved ones. We, as a nation, and a community, must continue to educate one another. Keep Informed and TAKE ACTION.
The consequences of repealing the ACA, are disastrous for ALL citizens. Contrary, to what many felt an unnecessary financial burden. The ACA provided protection for the citizen. Once, the repeal of the ACA, passes Congress: the ACA will almost no longer exist. There are many rumors flying around, and most “informational” support groups, are banning the patients from speaking. One thing is certain, and the law, Senate approved the repeal on 01/11/17, and the Repeal was approved by a simple majority vote. Once the House approves the measure, rumored as early as next week, a repeal legislation will be drafted, both Houses vote on it, its repeal passes-or fails-by simple majority vote, and onto trump. However, this repeal of ACA does have limitations.
***Update: The ACA Repeal was approved by the Congress on 01/13/17.
?There has been a new BILL INTRODUCED BY Sen. TED CRUZ (R-TX) on 01/12/16 to DISMANTLE the ACA entirely, co-sponsored by Sen. Lee, Mike (R-UT), Sen. Rubio, Marco (R-Fl), and Sen. Paul, Rand (R-KY): S.106
“A bill to repeal the Patient Protection and Affordable Care Act and the Health Care and Education Reconciliation Act of 2010 entirely”
Click here for updates: https://www.congress.gov/bill/115th-congress/senate-bill/106/all-info?r=12#cosponsors
Voice your criticisms NOW to HALT the complete demolition of the ACA:Obama care. Preexisting conditions, life-time maximums, unlimited OOPs determined by Insurers, and UNINSURABLE Status will become effective.
What can we expect?
WHEN the ACA DIES, so do *most-ALL if (S. 106 passes) of the provisions set within the ACA that protect the patient. Potentially, this blog may address the ACA repeal. Ultimately, contacting your state legislature is the only option, that is absolutely needed at this moment.
Congress.gov is a resource to use to gauge and check the current bills and legislation activities. It IS a wise idea that one contact via email, phone, or snail mail their political leaders of your state, and let them hear your voice, opinions, and stories.
Sources and Attribution:
Over 700 Groups Stand Behind #Cures2015: https://energycommerce.house.gov/news/press-release/over-700-groups-stand-behind-cures2015/