UPDATE: As of June 29, 2017: Documented 6 months later: Patients on Medicare, who infused via SCIG in their germ free environment, in their homes. were forced to hospitals, endangering their health more. Also, known patients had extreme delays in IGg, and/or are forced to sit for hours in hospitals, and were forced off of SCIG to IVIG, which has significant side effects. PI Patients that were not able to view my warnings via many PI groups on FACEBOOK. They would have been able to prepare, plan, and avoid the significant changes had my warnings not been sabotaged. The warnings in 12/16 were purposely sabotaged and has since continued their mission of profit, over patients. The public PI members were the most vulnerable group and were in need of the warnings. Various administrators, with their ulterior motive$, and tie$, deleted each and every warning. Deliberate attacks on my credibility, and deletion of vital information to the patients. Many of those who deliberately withheld the warnings, countered my warnings, were and are active affiliates, of guess who? The very group/org who continues to omit vital information to critically ill and vulnerable patients.
As of 6/2017, warnings of the #cures Medicare changes in 12/16, and the subsequent sabotage of the warnings has proven that my first warnings were correct. Those who deliberately withheld the facts, deleted warnings, insulted my intelligence were doing so for ulterior motives that do not benefit, support, or advocate for PI patients. Many patients have suffered from undue stress, anxiety, side effects, and inconvenience from change of location, route, and extreme delays. Patients were not able to prepare due to vital information and action posts on social media that were purposely deleted to withhold vital information to patients. All screenshots, data, and analytics give evidence of these facts.
Thank goodness for the SPs, many SPs were able to work with patients that were able to view the warnings (before removed) and be proactive.
THE FULL TEXT LAW OF THE 21ST CENTURY CURE CARES ACT (AS RELATED TO ANY INDIVIDUAL ON MEDICARE WITH NEED OF IMMUNOGLOBULIN, OR BIOLOGICAL REPLACEMENT, THERAPY AND EXCLUSIONS OF DURABLE MEDICAL EQUIPMENT, PER #CURES2015; SECT 5004)
IN REFERENCE TO #CURES AND THE CHANGES WITHIN CMS (MEDICARE) THAT WILL IMPACT MEDICARE PATIENTS WITH ABOVE CONDITIONS AND MODES OF TREATMENT.
THE FULL TEXT OF Social Security Act Sec. 1842. [42 U.S.C. 1395u] AS REFERENCED CHANGES PER #CURES2015, POSTED, LINKED, AND MODIFIED PER #CURES2015
THE FULL TEXT OF Social Security Act Sec. 1847 (42 U.S.C. 1395w–3(a)(2)(A) AS REFERENCED PER EXCLUSIONS UNDER CURES SECTION 5004b: NON INCLUSION OF DME INFUSION DRUGS).
ADDITIONALLY, THERE IS A LINK BELOW THAT DESCRIBES CMS-MEDICARE’S CURRENT BILLING SYSTEM, REGARDING (DME) BOTH PUMPS, TUBING AND SUPPLIES ARE ALL REFERENCED. WHAT I FIND EXTREMELY ODD, IS THAT THE MEDICATION MUST BE BILLED WITH THE PUMP CODES, OR THE MEDICATION IS NOT COVERED.
WOULD ONE BLINDLY FOLLOW A PHYSICIAN’S ORDERS? AS A ZEBRA, I HIGHLY DOUBT IT, WHICH IS WHY WE CONSULT WITH ONE ANOTHER, REGARDING MEDICAL, ENVIRONMENTAL, AND SOCIAL ISSUES. WHY STOP WORKING WITH ONE ANOTHER WITH ACTUAL LAWS THAT WILL AFFECT OUR COMMUNITY, WHEN WE, AS A PI COMMUNITY HAVE THE OPPORTUNITY TO CHANGE IT?
FROM MY PATIENT PERSPECTIVE, I HAVE ATTEMPTED TO BE A PART OF THE SOLUTION– SINCE THE DETAILS BEGAN DISPERSING. DUE TO MY ATTEMPT TO PREPARE THOSE THOUSANDS THAT WILL BE AFFECTED I, HAVE BEEN VICIOUSLY ATTACKED.
THE VERY PEOPLE, THAT I THOUGHT WOULD RELATE TO THE ENORMITY OF THIS LAW, TURNED THEIR BACKS, ON THEIR OWN PI PEERS, FELT IT WAS EASIER TO CRITICIZE ME– MOST LIKELY DUE TO LACK OF INFORMATION, AS MANY INDUSTRY LEADERS ARE STILL SCRAMBLING TO PREPARE FOR THE IMPACT ON 1/1/17.THAT IS IN THE PAST AND IS TIME TO MOVE FORWARD….
REALIZE THAT WE ARE A COMMUNITY & EVERY SINGLE PI PATIENT THAT MAY BE AFFECTED IS A HUMAN LIFE, IT IS OUR HUMAN DUTY, TO PRESERVE LIFE. IF WE HAVE ANY OUNCE OF INFORMATION THAT WE CAN USE, TO DO SO. THE TRUTH IS RIGHT HERE IN FRONT OF THE READER TO DISSECT
PRESENTED IS THE CASE IN POINT: THE FACTS. REVIEW, RESEARCH, AND THEN DRAW YOUR PERSONAL EDUCATED CONCLUSIONS ON WHAT IS GOING TO TRANSPIRE. THE ORGS, AND MANY AGENCIES ARE OF TREMENDOUS HELP TO OUR COMMUNITY…WHEN WAS IT DETERMINED THAT WE CANNOT HELP EACH OTHER WITH A LAW AS LARGE AS THIS, THAT HAS THE POTENTIAL TO AFFECT TENS OF THOUSANDS?
IF YOU ARE READY TO BE A PART OF THE SOLUTION, WE NEED NUMBERS OF POTENTIAL MEDICARE PATIENTS THAT WILL BE AFFECTED.