This is a weekly thing, never know how i will feel afterwards. Two years now. There are times I get so depressed and just do not want to infuse, go to weekly Drs appointments, tests, etc….over and over and over, rinse, wash, repeat. I wonder how many other people go through this slump.
Planning Infusion day, and days of side effects (which are always unknown) really gets annoying to me. I don’t think anyone gets it. Unless you are in our life, a person with A PI, you never will get it. That’s what’s so frustrating with organizations that supposedly advocate for us, they don’t have a PI. They have no clue what it’s like, how we feel, yet they earn money off of our illnesses.