WHAT? Yes, what you viewed is not a cruel joke. Read On:
Add the following to your toolbox of self-advocacy:
Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients.
Technically, HIPPAs Privacy Rule, created national standards for protection of Individually Identifiable Health Information Health(PHI). The Security’s Rule is established as a national set of security standards in how records are stored and/or transferred, the Electronic Protected Health Information (e-PHI). Which in theory HIPPA should protect patients from sharing any of their personally identifiable records being released. In THEORY.
HIPPA specifically states that health information cannot be released without written consent to a physician to use or share your information for marketing or advertising purposes. The catch?
How are these entities able to trade/sell your names/diagnosis/treatments with the pharmaceutical companies that manufacture your life sustaining meds for a boatload of money? Worse? They get WEALTHY & POWERFUL. They own a good part of WASHINGTON (vertices 3).
It’s VERY EASY. They self proclaim that they are not a mandated “COVERED ENTITY” for HIPPA Compliance. Easy enough, and that is what they do. Under the e-PHI/PHI, if a patient volunteers verbally, or written form health related information (DX,MEDS, DOCS, NAME, Address)…..that is a-o-k. Not a violation of HIPPA. 1) They self proclaim they are not a “covered entity” & therefore not held to HIPPA Law. 2) They let the patient volunteer their private health information (under false pretenses) and a lot of psychology.
WHY are so many vulnerable patients willing do this? 3)As stated, they use methodical pre-mediated psychological mind games. In this case, it’s called the Reprococity Norm or even, The Foot in the Door. Simple speak: An expectation that if they do something for you, you will do something for them. In this case, (there are several examples) they buy you lunch at a meeting, you complete the survey or paperwork with private and medical information. Foot in the door is basically the same, they do something nice for you and expect a larger request from them to be honored by the patient.
4)Back to the information gathered: The PHI, patient information, medical diagnosis, treatment, care, life-sustaining medications, physicians, records, labs, are obtained in a sadistic way.
Albeit, not illegal, unless the office of Civil Affairs, Attorney Generals, and the IRS decide to audit their real activities. Since that’s not probable the Vertice (of the triangle) preys on desperation the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded way. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the person with a rare and terminal disease. They methodically extract the information they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t administer and stalk groups! Posing as Patients, because they do. The same for ⬇️.
5) The second vertices throws in the statistical analysis/manufacturing/economics from the information gathered by vertices 1. If your following me, it’s the pharmaceutical industries that manufacture the life saving medications of the patient. The millions (or trillions) of tax-free dollars and/or taxable deductions, depending on which one gets the cash and which one “donates” occurs.
6. Finally, can’t fool you here ;( throwing (LOTS) of money at politicians, to write legislation that continues this cycle. Only now….we are heading into a viscous era with the development biosimilars and stem cell development and manufacturing. Have to applaud the 700+ organizations that supported CURES, NOT, and the complete lax in FDA oversight.
How are they doing this?
Easily, the in-between gains the trust (released from any HIPPA violation) of chronically ill patients, at the same time being protected by a 501(c) status. Therefore, the “gifts” are tax-free to boot. We don’t really KNOW how much cash is exchanged, millions, trillions? IT SURE IS TAX FREE.
Patients are not aware of the strategies used. Many desperate patients prefer to look the other way (see psychological examples), plain don’t know, or more than likely truly believe in the “only” agency that “advocates” for them (*Psychological explanations: Conformity; Social Loafing, Deindividuation, Group Polarization, In group Bias, Status Quo and Status Quo Bias).
>Until the day comes and their no longer profitable to the triangle of the powers. That in fact, alienate them. Then they die. No questions asked. New patients are diagnosed. Wash. Rinse. Repeat.
***The cycle continues, and has, for at least 3 decades, possibly longer.
**What you can do to Protect Yourself (Advocate)
Recognize the red flags. Understand the purpose. Regain your HIPPA rights. You, WE, are not someone’s profit. WE are people with many diagnoses’. We live our battles everyday, we are NOT their blood money.
Rescind all previous permissions given for ANY records, paper and on any electronic database. Demand immediate deletion and shredding. Certified mail, fax, email. Are you registered with the NIH? Rethink that, as it stands it’s not a wise decision to have your healthcare records in a governmental agency, with # Cures now law.
Re-evaluate the rules you went through to become a member of any group, NFP or Social Media, ANY one. Never put in writing or verbally the specific private health related information mentioned above. On paper, mislead, or put NA for dx, doctors, meds. Don’t open ANY email from these groups– your email is traceable down to the GPS. Review the ways blogged here. Review the video above for legitimate organization features (Instagram pipunited). Research the org /agency of choice, have they really supported their patient population with legislation? Review their lobbying and bills opposed or supported. Stay tuned, I will address details in-depth to help you decide by advocating who really supports the Patients in your field of Chronic Illness.
I know it’s not believed as the truth, but every one of the patients they use to increase their bank accounts, should be aware of how much power they have given these people over their own mortality.
√I don’t know about you, but my physical struggling will not be capitalized on for greed.
Cliffhanger: There is a major 4th “vertices” to add to this “TRIOLOGY”. This entity and the “Profit NOT Patients”will be made public at a later date. Onward to our one Year Anniversary celebration!
Make sure to subscribe,you don’t want to miss it!
~~I hope this helps someone.