Every Patient Needs to Know: Patient Privacy is Profit. The Red Flags of Betrayal

Would you give a stranger your address? What about your Social Security Number? Probably not. Why are you giving away your Private Health Information? Chronically Ill patients are Cash in the bank. READ ON; Every patient with a chronic illness needs to know the dangers of volunteering your medical information. It’s more than a bank account they steal, it’s your life, literally. Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients. the Vertice (of the triangle) preys on the desperation of the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded manner. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the individual with a rare and terminal disease. They methodically extract the information- they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t ADMINISTER and stalk groups! The same for ⬇️.

WHAT? Yes, what you viewed is not a cruel joke. Read On:

Add the following to your toolbox of self-advocacy:
Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients.

Technically, HIPPAs Privacy Rule, created national standards for protection of Individually Identifiable Health Information Health(PHI). The Security’s Rule is established as a national set of security standards in how records are stored and/or transferred, the Electronic Protected Health Information (e-PHI). Which in theory HIPPA should protect patients from sharing any of their personally identifiable records being released. In THEORY.

HIPPA specifically states that health information cannot be released without written consent to a physician to use or share your information for marketing or advertising purposes. The catch?
How are these entities able to trade/sell your names/diagnosis/treatments with the pharmaceutical companies that manufacture your life sustaining meds for a boatload of money? Worse? They get WEALTHY & POWERFUL. They own a good part of WASHINGTON (vertices 3).

It’s VERY EASY. They self proclaim that they are not a mandated “COVERED ENTITY” for HIPPA Compliance. Easy enough, and that is what they do. Under the e-PHI/PHI, if a patient volunteers verbally, or written form health related information (DX,MEDS, DOCS, NAME, Address)…..that is a-o-k. Not a violation of HIPPA. 1) They self proclaim they are not a “covered entity” & therefore not held to HIPPA Law. 2) They let the patient volunteer their private health information (under false pretenses) and a lot of psychology.
WHY are so many vulnerable patients willing do this? 3)As stated, they use methodical pre-mediated psychological mind games. In this case, it’s called the Reprococity Norm or even, The Foot in the Door. Simple speak: An expectation that if they do something for you, you will do something for them. In this case, (there are several examples) they buy you lunch at a meeting, you complete the survey or paperwork with private and medical information. Foot in the door is basically the same, they do something nice for you and expect a larger request from them to be honored by the patient.

4)Back to the information gathered: The PHI, patient information, medical diagnosis, treatment, care, life-sustaining medications, physicians, records, labs, are obtained in a sadistic way.
Albeit, not illegal, unless the office of Civil Affairs, Attorney Generals, and the IRS decide to audit their real activities. Since that’s not probable the Vertice (of the triangle) preys on desperation the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded way. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the person with a rare and terminal disease. They methodically extract the information they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t administer and stalk groups! Posing as Patients, because they do. The same for ⬇️.

5) The second vertices throws in the statistical analysis/manufacturing/economics from the information gathered by vertices 1. If your following me, it’s the pharmaceutical industries that manufacture the life saving medications of the patient. The millions (or trillions) of tax-free dollars and/or taxable deductions, depending on which one gets the cash and which one “donates” occurs.

6. Finally, can’t fool you here ;( throwing (LOTS) of money at politicians, to write legislation that continues this cycle. Only now….we are heading into a viscous era with the development biosimilars and stem cell development and manufacturing. Have to applaud the 700+ organizations that supported CURES, NOT, and the complete lax in FDA oversight.

How are they doing this?
Easily, the in-between gains the trust (released from any HIPPA violation) of chronically ill patients, at the same time being protected by a 501(c) status. Therefore, the “gifts” are tax-free to boot. We don’t really KNOW how much cash is exchanged, millions, trillions? IT SURE IS TAX FREE.

Patients are not aware of the strategies used. Many desperate patients prefer to look the other way (see psychological examples), plain don’t know, or more than likely truly believe in the “only” agency that “advocates” for them (*Psychological explanations: Conformity; Social Loafing, Deindividuation, Group Polarization, In group Bias, Status Quo and Status Quo Bias).
>Until the day comes and their no longer profitable to the triangle of the powers. That in fact, alienate them. Then they die. No questions asked. New patients are diagnosed. Wash. Rinse. Repeat.
***The cycle continues, and has, for at least 3 decades, possibly longer.

**What you can do to Protect Yourself (Advocate)
Recognize the red flags. Understand the purpose. Regain your HIPPA rights. You, WE, are not someone’s profit. WE are people with many diagnoses’. We live our battles everyday, we are NOT their blood money.

Rescind all previous permissions given for ANY records, paper and on any electronic database. Demand immediate deletion and shredding. Certified mail, fax, email. Are you registered with the NIH? Rethink that, as it stands it’s not a wise decision to have your healthcare records in a governmental agency, with # Cures now law.
Re-evaluate the rules you went through to become a member of any group, NFP or Social Media, ANY one. Never put in writing or verbally the specific private health related information mentioned above. On paper, mislead, or put NA for dx, doctors, meds. Don’t open ANY email from these groups– your email is traceable down to the GPS. Review the ways blogged here. Review the video above for legitimate organization features (Instagram pipunited). Research the org /agency of choice, have they really supported their patient population with legislation? Review their lobbying and bills opposed or supported. Stay tuned, I will address details in-depth to help you decide by advocating who really supports the Patients in your field of Chronic Illness.

I know it’s not believed as the truth, but every one of the patients they use to increase their bank accounts, should be aware of how much power they have given these people over their own mortality.

√I don’t know about you, but my physical struggling will not be capitalized on for greed.

Cliffhanger: There is a major 4th “vertices” to add to this “TRIOLOGY”. This entity and the “Profit NOT Patients”will be made public at a later date. Onward to our one Year Anniversary celebration!
Make sure to subscribe,you don’t want to miss it!

~~I hope this helps someone.
❤️PIPPY

Knowledge Empowers

The Gateway to the Current Health-Care Chaos: 21st Century Cures Act (#Cures)

The 21st Century Health Care Act (#Cures) was masqueraded as a Bill to advance health-care, treatment, and research into the next Century. Instead, the 21st Century Health Care Law was a chess-like maneuver spiraling America back decades. The fraud, bribery, and greed of the 21st Century Health Care Act (#Cures) voiced by Senator Warren are occurring. What is certain, is that #Cures was a purposeful manipulation of profit and politics, and patients represent the pawns.

The 21st Century Cures Act (AKA #Cures)was praised as advancing science and medicine into concise and effective developments and treatments for illnesses. Cures proponents claimed medical care and treatments would evolve to higher standards advancing into the the 21st Century. Instead, the development of the #Cures bill, now 21st Century Cures Act is the snowball that began the avalanche. Senator Elizabeth Warren (D-MA) was one of the few Senators that refused to vote for the 21st Century Cures Act (AKA #Cures).

Note: The 21st Century Cures Act is the law that was signed by President Obama. Also known, as #CURES. The 21st Century Cures Act and #Cures mean the same thing, used interchangeably. Hint: I know we all know this NOW; it is like Affordable Care Act (ACA) and Obamacare-2 names, same thing 🙂

The 21st Century Cures Act PERMITTED the health care political crisis to occur. The consistent threats to abolish American rights of access to care, treatment, and even prolonged life began by the signing of 21st Century Cures Act. As we reflect on what millions have worried about daily, their health-care, and the persons who have the power over their life and death. We can look into the provisions of Cures.

SIDE NOTE: The last amendments to the 21st Century Cures Act were presented in July 2016. There are not any recorded last minute “Bait and Switch” or “Trick” tactics. The politicians & lobbyist who did not approve of the Final Bill presented their opinions, facts, and funds to derail #Cures. Likewise, those who approved of the Bill with Amendments from 07/2016 did nothing and were aware of the last amendments. A DEATH TOLL WAS EXPECTED. See the end of this blog for a surprising opponent.

The Republican agenda, was crystal clear when they drafted Cures. One just need to remember the last 9 months and the behaviors, actions, motives, money, power, lies, and deceit just as written in #Cures. Coincidentally, 21st Century Cures Act was signed into law by President Obama in December. As a novice, upon reading (and re-reading) the #Cures law, I was able to see many discrepancies in #Cures last December as a beginner blogger (no hate for the horrid typos and structure :0) here,here, here, and here.

In November of 2016, Sen. Warren stated the blatant truth, ““I cannot vote for this bill,’’ Warren said on the Senate floor, speaking to a mostly vacant chamber.

I will fight it because I know the difference between compromise and extortion.”

Those words ring loud and clear 9 months after the passage of #Cures, and the later chaos many families have endured due to the 2017 political-healthcare climate.

21st Century Cures Act (#Cures) WILL: First giveaway – legalize fraud; Second giveaway – cover up bribery;Third giveaway – hand out dangerous, special deals to Republican campaign contributors (Senator Warren, Elizabeth). Source: HERE

Senator Warrens background as a Speech and Language Pathologist, may have her in the unique position that Washington fails the American people. Respectfully, Sen. Warren is one of the few that are educated, and understand the personal, familiar (family), medical, and unethical consequences of the #Cures Act. Unique to her peers, she is not motivated by financial lobbyists. Consider signing the Petition created by Sen. Warren on the side bar and at the end of this blog. I am aware we are WAY past November 2016 :). By circulating this information the public can gather more information about the historical beginning of the 2017 battle for health-care.

#CURES is the contrary to its namesake. The 1000 page law, is far from any cure. Most citizens expect their medications, that are effective, to treat their individualized conditions. The medications we take should come from a reliable source. After all, we are not ordering high-dollar medications from China. Right? The supposed price tag, mark up, inflation, is sometimes justified because of the valid research and pharmaceutical development followed by FDA stringent guidelines necessary prior to patient-usage. NOT.SO.WITH.CURES.

As predicted, #Cures is what has led to the current health care tug-of-war of patient lives or padding political pockets in America.

Whats wrong with the 21st Century Cures Act?

PROFIT. Warren stated her concerns with the 21st Century Cures Act in November 2016:
Legalize Fraud:Pushing treatments without scientific evidence that they work is fraud
Cover up Bribery: Drug companies keep secret gifts associated with “medical education” in exchange for prescribing specific medication
Hand out dangerous, special deals to Republican campaign contributors (i.e.,Mitch McConnell): It delivers a special deal (cellular and regenerative therapy)people can sell dangerous treatments without meeting the FDA gold standards for protecting patient safety and making sure these drugs personalized for a specific condition.

#CURES
The 21st Century Cures Act, or #Cures Set the Momentum for Current Health Care Crisis in America

Continue reading “The Gateway to the Current Health-Care Chaos: 21st Century Cures Act (#Cures)”

Update on #Cures: Patients Lose

Something about #Cures is earily related to the current crisis with health-care in America. There may be, yet again, a false sense of security if your on Medicare.

21st Century #Cures Impact- continues to impact infusion patients. Does not look like an appeal will occur (realizing AHCA is now at forefront, my concerns, fears, shock, and personal turmoil looms). I began a mission because of #cures, to inform patients to be knowledgeable and proactive based on fact . To the best of my abilities, took risk others refused, lost my own community, because I tried to help. I am a patient too. I’m struggling, afraid, and depressed. The update on Cures: http://newyork.cbslocal.com/2017/03/27/heart-patient-infusion-costs/
Full Text of CURES: HERE
Something about #Cures is earily related to the current crisis with health-care in America.  There may be, yet again, a false sense of security if your on Medicare. Those on Medicare and receive any type of immunoglobulin replacement therapy, #Cures is still law, and patients have not dodged the AHCA reform act.


As I went to check on my child, and say good night. He read the following to me:

The tongue of the wise uses knowledge wisely, but the mouth of the fools pours forth foolishness. –Proverbs 15:2

This scripture certainly nails the entire situation that has evolved, beginning with my awakening to the truth.  As I read a few verses further:

A wholesome tongue is a spirit of life.  But perseverance in it breaks the spirit. –Proverbs 15:4

In other words, A gentle tounge with its healing power is a tree of life, but willful contrariness in it breaks down the spirit. The Amplified Bible

Having spent hours researching, reviewing, and reflecting; my perseverance is walking a thin, invisible line that is either leading somewhere or nowhere. The loss of #Cures, was the beginning of many losses that the chronically ill will witness. I cannot begin to explain, how millions will be affected. To be honest, since Thursday, our house has been utterly quiet, a sadness and sense of helplessness and dispair. I hear  and read to often:

Or similar but…

Upon first read, yes. Seems simple enough. Then, I ponder. If one gives into whats happening and does nothing. What will the outcome be? Thats the difference, you challenge yourself not to accept what is out of your control, and idly shrug it off. Instead, what are the other options to circumvent, or change the direction in your destiny that we are powerless to?

The absolute truth is not what I want to believe, not what anyone wants to believe. And, like #Cures, what everyone refused to believe, and its happening.

Attribution: The 700 Groups That Supported the 21st Century Act: https://energycommerce.house.gov/news/press-release/over-700-groups-stand-behind-cures2015/

Several Key Organizations are Working Together, to FIX Cures. Individuals: Take Action Now.

Notice: Do not be fooled as now, specific supporters are now back peddling their way out of their support of Cures, a little late, heh? Excuses abound. Mainly, “Congress Fooled Us, and at the Last Minute Changed the Legislation“.
NO: THAT IS A LIE

  • July 2016 Revision of CURES: Page 295:
  • As mentioned in the earlier blog post, key organizations, manufactures, and others are making an active effort to Keep Infusions in the Home, and amend  Cures. Key Organizations include,  Cardiac Infusion Centers, John Hopkins, and the support continues to grow. BUT, be wise. There is a REASON for this mentality, of thought and actions.

    Upon reviewing current “Action Alerts” that tell, interested parties of needed support. It appears the link, is “DEAD”,  as linked by one particular group that supports the coalition.

    Since, time is of the essence, to let your voice be heard, I am REPOSTING the direct link:

    http://www.keepmyinfusioncareathome.org/take-action/

    To Date, a few organizations, agencies, manufacturers, specialty pharmacies, and other interested parties are in SUPPORT and WORKING TOGETHER for the United Good of the Patients, and their health.

    primaryimmunepatientsunited.com
    Don’t Be Fooled, Money Talks. Some of the Agencies, once the truth hit, have back peddled. BE SMART!

    Notice: Do not be fooled as now, specific supporters are now back peddling their way out of their support. Excuses abound. Mainly, “Congress Fooled Us, and at the Last Minute Changed the Legislation“.
    NO: THAT IS A LIE:

  • July 2016 Revision of CURES: Page 295:
    July 2016 Legislation Supports Facts of the Medicare Cuts

    The Few Organizations, Manufacturers, and Senators who OPPOSED #Cures. A few can be perceived as, “mitigating damages of their peers ($$$)“. In order to not “alarm” patients. Really. That is how they think, what they say,
    and their actions speak louder than their “words”. IF you are not desperate to belong to a community that basis their revenue on social psychology tactics, plays on the insecurities of many persons suffering with long term and chronic illnesses, and uses hope of belonging to a very desperate, and rare population base. Your in the right place.
    It is an abuse of the very population they purport to advocate. Again, think smart.

     

     

    Attribution: The 700 Groups that Supported the 21st Century Cures Act:

    July 2016 Legislation: http://docs.house.gov/billsthisweek/20150706/CPRT-114-HPRT-RU00-HR6.pdf

  • Decephiring #Cures 2: A Formal Summary, and Solution. Take Action.

    Keep Infusions at Home, take action! Summary, proposed solutions, and the Appeal of the ACA by Senate.

    Source: Decephiring #Cures 2: A Formal Summary, and Solution. Take Action.

    Source and Attributions:

    https://energycommerce.house.gov/news/press-release/over-700-groups-stand-behind-cures2015/