When Will This Headache Stop?

A constant, one-sided headache that does not respond to any treatment and last for.weeks.to.months. It’s not a Migraine, in fact typical Migraine Medications make it worse. Guess what? I will save you the legwork because their is a condition and treatment for this debilitating chronic headache! It’s another “rare” diagnosis–because we are lucky like that 😂. There is also ONE treatment that works, and once you find out about it, you will appreciate it. Research is slowly coming out, the new “herbal” supplement is claimed as Melatonin, nope, melatonin did not work for me. Read on…

When Will This Headache Stop?

IN 4 Days: Skin on Elbow and Hand was Dead

In 4 days what first looked like a minor scrape, was a crater, quadrupled in size, the flesh from elbow and hand dead. The bacteria entered directly through skin, no entrance via cut, bug bite, scratch and spread rapidly

[contact-field label="Name" type="name" required="true"/][contact-field label="Email" type="email" required="true"/][contact-field label="Website" type="url"/][contact-field label="”Message”" type="”</p>" <p><strong>UPDATED /> What you see below may not be cellulitis. As I’ve been told by a trusted specialist that’s cellulitis does not continue to re occur in the same place. I have battled this excruciating condition since late May. I do not know what it is, it continues to reappear in the same locations, extremely painful, and as you can see is very rapid. I’ve been on several antibiotics since May and I continue to get these /> If anyone has experienced such, please help me to figure this out.</p> <p>As a person with a Primary Immune (PI)deficiency I am pretty “anal” about /> A germapobe, I am. Long before the PI diagnosis: I go out of my way to avoid any contaminates. Which is why the following story has me questioning: Where and how did I contract a skin eating bacteria.</p> <p>Four days ago, I mentioned to my son, “my elbow was really hurting”. A weird statement for me. As I endure a lot more pain than what appeared As a scrape on my elbow. </p> <p>The pain had bothered me for a while, I ignored it. When leaning on a hard surface I cradled my elbow with my palm. My son, had mentioned, “Yes, the small scrapes seem to hurt the most”. I agreed. A bit later, he said, “Mom, that does not look like a scrape”. </p> <p>Although, it was a small red area on the bony part of my elbow, I was unable to see it. So, he snapped a picture. Enlarging the pictures he said, “this looks like pieces of glass”. Indeed, I surprised myself how odd this “scratch” appeared. Maybe a form of psoriasis or /> [caption id="attachment_9271" align="aligncenter" width="768"/] That’s one weird scratch[/caption]


I then notice a slight irritation on my palm and finger. Weird. I applied some topical medication, and bandaged my elbow and hand and went to bed.

Day 2:
Removing the bandages. My little photographer was the first to see if this, “scrape” was improving. I was curious if it was at least scabbing. As the pain was pretty intense. The photos show no scabbing, but indentations. My concern began to mount. As my IGg levels are decreasing, I’m very susceptible to all bacteria, viruses, fungus. I’ve limited all activities, realizing that I am prone to serious infections. No scabbing, and complete change in appearance, concerns me.

The once broken glass appearance was now a sunken indentation.

The life-long patient that I am, I began researching what the heck this was. My husband, just realizing the situation, thought a possible spider bite. We ran through so many scenarios. He, and my kids suggested to go to the doctor. Absolutely NOT. As a chronic patient, going to the doctor exposes me to many more germs. As well, I have , learned how to take care of various illnesses. It’s exhausting explaining CVID to the medical field. Risking get very ill, and going in for a strange “painful-scrape-turned-glass-turned-crater” was not what I had the energy for. After researching for hours on dermatology, skin infections, insect or spider bites. There was not any connection.

Day 3:
The bandage pulled off, and the look on my child’s face was worrisome. I asked, really hoping, “does it look better”? The reply, “Mom go wash it off, looks like some cream is on it”
I did. I could see some type of transparent film covering the area. Thinking it was padding from the gauze. Ummmm, no. It was the skin.

Day 4: The Skin sloughing grew larger, peeling off layers as I took off the protective covering. I decided, I need medical advice.

*The Diagnosis: Cellulitis
*My Case: It is not unusual that I have complications that are not technically diagnosable. Again, I have a rare disease, and research is limited. My manifestations are certainly a concern. Although, typically persons contract Cellultis on their feet or legs. The bacteria travel through an open cut or bite. I had neither. Especially, the palm of my hand. The bacteria were able to infiltrate the layers of my skin without an actual entry point, as those with cellulitis contract it.
*Complications: The bacteria may travel to lymph nodes and into the bloodstream. This can lead to a blood infection or permanently damage lymph vessels, which are part of your immune system. Other complications can also develop. – See more at: https://www.aad.org/public/diseases/rashes/cellulitis#sthash.f0BhLYBR.dpuf
Causes: cellulitis is caused by two types of bacteria:
Streptococcus and staphylococcus
*Staphylococcus aureus is the most dangerous of all the many common Staphylococcus bacteria.
Causing the antibiotic resistant MRSA and Sepsis.
mrsa poster

Lesson Learned: For myself, family and others. Staph naturally lives in most people’s nose, and other body parts. If you blow your nose, etc., and touch any open access point (cut, blister, dry skin). The staph is then introduced into your body, potentially creating the above case. Keep all open wounds covered with an antibiotic cream and bandaged until scabbed over. Wash your hands frequently!
Don’t Open the Door to Germs

Tomorrow is Day 5: I have begun the antibiotic regime, and care of the site. If all goes well, This crater will heal. If it does not I will have intravenous antibiotics.

On The Eve of D-Day of the ACA-Americans, Everywhere, PRAY- –Millions of Lives are at Risk- NO TO THE AHCA

ACHA diabolical cuts: Essential Health Benefits EHB), Bans on Annual and Lifetime Limits, Uncapped Premiums eliminates the single risk pool and more

 

There will be a vote on the largest bill, AHCA, that will impact millions of Americans, tomorrow 03/24/17, 10 am Eastern  Streams Live.  Tonight, trump demanded the conservative Republican members of the United States House of Representatives known as the, “Freedom Caucus” an AHCA vote by  tomorrow. Tonight is D-Day  regarding the repeal and replacement of ACA, or AHCA plus the  Essential Health Benefits (EHB)repeal. In addition, to the  diabolical cuts including:

  • The Meadows Act eliminates the “Single Risk Pool”  (Insurers determine your Premiums, UNCAPPED)
  • The Meadows Act eliminates “Rating Restrictions”  (Insurers determine your Premiums, UNCAPPED)House in Session ACHA LIVE
  • The Meadows Act REVERSES the ban on Lifetime AND ANNUAL LIMITS (Many will be forced to go bankrupt. Those with chronic illnesses, or premature infants will hit lifetime and annual limits very quickly)–
  • The Meadows Act eliminates the no out of pocket cost for preventative services, such as mammograms.
  • The Meadows Act REVERSES the standardized documentation mandates (unable to compare plans, coverage and prices)
  • The Meadows Act REVERSES the Medical Loss Ratios standards, another win-win for insurance companies

The business person that trump is, I am pretty sure that he is using the pressure tactic. The GOP have hated ACA since its inception. trump, is giving  the Freedom Caucus an ultimatum–vote, or the bill stays as is, ACA. The GOP in their mighty heads of pride have only one answer–CUT IT–APPEAL every single section of the ACA. trump has also threatened members of congress,with their seats (and most fell for it). There are a few Republicans that are a maybe or a NO, we have to convince them by the a.m. to vote no. They are listed at the end of the blog.

The truth is, the ACA has saved millions of lives, and the GOP cannot offer any suitable replacement.  Complete details are not released at this moment. What is available is that a summary of the topics debated at tonight’s Caucus Meeting.  A formal copy will be updated tomorrow. I fell apart after reading (no TV), and researching the ACA , realizing that the GOP are offering  a certain death sentence to MILLIONS.

I blogged earlier about the Essential Health Benefits (EHB) protections being threatened. Yes, that has become a part of what they are calling an amended bill, referring to it simply as EHB. The Full Text LINK of Current ACA Law can be found here for comparison.

ACA (Right Click if you want to open directly)

Following is the text of the “Meadows Amendment” Mark Meadows information follows…(remember NOT to vote for him if you live in North Carolina). Summary as to how Meadows effects a vote for the AHCA tomorrow follows.

  • EHB Repeal for AHCA includes: FULL REPEAL of Essential Health Benefits (shown below)
Meadows Amendment 1
ESSENTIAL BENEFITS REPEALED MEADOWS 1
https://meadows.house.gov/
2/2 Meadows Amendment 1 Drafted 03/21/17
  • Essential Health Benefits INCLUDE:

Essential Health Care Benefits KILLED - Copy

Mark Meadows

Representative Mark Meadows

North Carolina (R)

(202) 225-6401

After the Caucus Meeting tonight there is speculation that the clause for preexisting conditions be reversed. If you have a condition that would meet preexisting status, pay attention to repealing: ‘SEC. 2704 ø42 U.S.C. 300gg–3¿. PROHIBITION OF PREEXISTING CONDITION EXCLUSIONS OR OTHER DISCRIMINATION BASED ON HEALTH STATUS

What Congressional Persons will vote NO? IF you live in one of their states, call, email, tweet, contact them and enforce a NO for the AHCA. Some of these guys appear to be terrified by Paul Ryan, little do they know, that Paul Ryan is despised. Call, email, DO it NOW!

  • MAYBE:

Scott DesJarlais TN (R)

(TWITTER) @DesJarlaisTN04

http://t.co/omXrQSGbn2 (FACEBOOK)


Paul Gosar  ARIZONA (R) http://gosar.house.gov/

(TWITTER) @RepGosar


Rep. Erik Paulsen MN (R)

(TWITTER) @RepErikPaulsen

paulsen.house.gov


Phone:
(202) 225-3765
Fax:
(202) 225-7768

Possibly NO: Andy Biggs (AZ) R:  1626 Longworth House Office Building
(202) 225-2635  twitter @RepAndyBiggsAZ

NO VOTES (PLEASE THANK THEM)

Leonard Lance (NJ) R 2352 Rayburn House Office Building
(202) 225-5361


Chris Smith (NJ) R

twitter: @RepChrisSmith

2373 Rayburn House Office Building
Washington, D.C. 20515

**NOTE I am not aware of all of the key persons, that may sway the vote. Please add any that you are aware of.


ATTENTION: 8 Governors Praised the AHCA and trump.  knowing what the GOP was planning. Sadly, one of these Governors, is from my state, just elected in 2016.

  • Indiana: Holcomb                                                            
  • Maine: LaPage:
  • Mississippi: Bryant
  •  Missouri: Greitens:
  •  Utah: Herbert:
  •  Alabama:Bentley
  • Idaho: Otter: 
  • Kansas: Brownback

greitenuse

URGENT: #TRUMPCARE (AHCA) Goes Before Congress Today. URGENT To exclude maternity, hospitalization, pharmacy and more (Reconciliation). Contact Information and Script Included in Blog.

Contact your congressperson TODAY. TELL them NO on ACHA. EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization

The ACHA goes before the Congress TODAY. IT is imperative that the ACHA NOT be voted in at the congressional level. CALL and Reach your STATE REPS through all social media outlets ASAP. Trumpcare, known as the American Health Care Act (ACHA) and is a poor replacement for the American Care Act (ACA) AKA Obamacare,   I will give you quick information on making your voice heard, and summarize what the ACHA means for you below. Trump specifically told Congress that if they did NOT support the ACHA they would lose their jobs. They may be outed be Trump, but they can and will be reelected at the General Elections when voted in by the American People for STANDING up for their constituents.

How to find your State Reps: Click on the following link https://callyourrep.co/ or : HERE

Similarly, you can download the Entire Registry HERE

https://callyourrep.co/

Fill in your Address or Zip Code: Your State Reps will be populated.

Locate Your: House Representative

List of Twitter Handles for Congress: Congress Twitter Handles LIST or here: https://twitter.com/cspan/lists/members-of-congress/members

screencapture-callyourrep-co-makeacallscript-1490284129940 - Copy

A copy of  a Script:

https://callyourrep.co/callscript?id=X4h22tVQETe0GwDEBgbncnuA

Additionally, many organizations are listing direct links for one to reach your congressional reps., keep in mind email tends to end in the trash (!?). I highly encourage you to use this method of contact also, as well as reaching out via social media, and CALLING.

Primary Immune Deficient Patients (Via IDF) Action Alert:

http://primaryimmune.org/idf-advocacy-center/action-alerts/current-action-alerts-2/

The Partial List of EXCLUSIONS OF THE ACHA INCLUDE:

A few of the basic health care EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization, and the list is endless.The ACHA is far reaching, and has deadly consequences. It targets the elderly, children, those with existing illnesses, the poor, and basic health care inclusions.

 The Following Health Care Benefits NOW Covered Under ACA will be KILLED

KNOWN AS THE BYRD RULE, RECONCILIATION, ESSENTIAL HEALTH BENEFITS:

The List below states what is currently covered under federal law (ACA): This LIST IS WHAT THE HCHA WILL ELIMINATE:

Essential Health Care Benefits KILLED - Copy

Rep. Don BeyerVerified account

In a Nutshell:

cost of hca - Copy

ACHA will cause people with Preexisting Illnesses to lose access to health insurance. As usual GOP talks out of both sides of their mouth. For Example the Energy and Committee Health Chair stated:

blame-the-senate-rules - Copy

What the AHCA MEANS TO YOU (Not including the Eliminations above)

what acha means to you

If you are covered under private insurance, medicare, and don’t think these exclusions will affect you: Think AGAIN. How the Rich GAIN and the Poor and Middle Class Lose under the ACHA:

How the rich gain and the poor lose under the Republican health plan

Congress is to meet at 11:30 am today. March 23 to vote. shockingly, the majority of the R Congress do not even know what the HCHA includes. It is reported it may be through Monday, Reach out and tell them your concerns.

URGENT: #TRUMPCARE Goes Before Congress Today. URGENT Contact Your State Reps. Exluding: Medicare, Prescriptions, Hospitalization, etc., (Reconciliation) Contact Information and Script Included in Blog

Contact your congressperson TODAY. TELL them NO on ACHA. EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization

The ACHA goes before the Congress TODAY. IT is imperative that the ACHA NOT be voted in at the congressional level. CALL and Reach your STATE REPS through all social media outlets ASAP. Trumpcare, known as the American Health Care Act (ACHA) and is a poor replacement for the American Care Act (ACA) AKA Obamacare,   I will give you quick information on making your voice heard, and summarize what the ACHA means for you below. Trump specifically told Congress that if they did NOT support the ACHA they would lose their jobs. They may be outed be Trump, but they can and will be reelected at the General Elections when voted in by the American People for STANDING up for their constituents.

How to find your State Reps: Click on the following link https://callyourrep.co/ or : HERE

Similarly, you can download the Entire Registry HERE

https://callyourrep.co/
Locate your State Reps

Fill in your Address or Zip Code: Your State Reps will be populated.

Locate Your: House Representative

 

List of Twitter Handles for Congress: Congress Twitter Handles LIST or here: https://twitter.com/cspan/lists/members-of-congress/members

screencapture-callyourrep-co-makeacallscript-1490284129940 - Copy

 

A copy of  a Script:

https://callyourrep.co/callscript?id=X4h22tVQETe0GwDEBgbncnuA

 

Additionally, many organizations are listing direct links for one to reach your congressional reps., keep in mind email tends to end in the trash (!?). I highly encourage you to use this method of contact also, as well as reaching out via social media, and CALLING.

Primary Immune Deficient Patients (Via IDF) Action Alert:

http://primaryimmune.org/idf-advocacy-center/action-alerts/current-action-alerts-2/

The Partial List of EXCLUSIONS OF THE ACHA INCLUDE:

A few of the basic health care EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization, and the list is endless.The ACHA is far reaching, and has deadly consequences. It targets the elderly, children, those with existing illnesses, the poor, and basic health care inclusions.

 The Following Health Care Benefits NOW Covered Under ACA will be KILLED

KNOWN AS THE BYRD RULE, RECONCILIATION, ESSENTIAL HEALTH BENEFITS:

The List below states what is currently covered under federal law (ACA): This LIST IS WHAT THE HCHA WILL ELIMINATE:

Essential Health Care Benefits KILLED - Copy
@RepDonBeyer Representative Don Beyer

Rep. Don BeyerVerified account

In a Nutshell:

cost of hca - Copy

ACHA will cause people with Preexisting Illnesses to lose access to health insurance. As usual GOP talks out of both sides of their mouth. For Example the Energy and Committee Health Chair stated:

blame-the-senate-rules - Copy

What the AHCA MEANS TO YOU (Not including the Eliminations above)

what acha means to you

If you are covered under private insurance, medicare, and don’t think these exclusions will affect you: Think AGAIN. How the Rich GAIN and the Poor and Middle Class Lose under the ACHA:

How the rich gain and the poor lose under the Republican health plan

Congress is to meet at 11:30 am today. March 23 to vote. shockingly, the majority of the R Congress do not even know what the HCHA includes. It is reported it may be through Monday, Reach out and tell them your concerns.