The Better of Two Evils: Chronic Pain or Deadly Infection?

What would you do?

Another chapter in my book of life is either beginning, or ending. I began this “blog” as a journal……and the drama, trauma, dreams and love continue to write out my journey in this body.

I am aging fast. I am pale. Dark circles under my eyes. I am sad at who I see in the reflection of the mirror. Or is this person in the reflection a result of debilitating pain that does not stop?

OR am I? I have suffered CHRONIC back pain for several years. I cannot believe that I have let it go this long. In the past I have tried searching for answers, and that was a futile attempt. Add to that I am stubborn, and medicine has failed me in the past.

Spinal Nerve FunctionThe pain is in my upper (thoracic) back, on one side only, and is wrapping around to the front torso of my body. The pain has become so severe that I am bed bound most of the time. Sitting, standing, any activity crushes me with such pain that I simply cannot live the half-a-life that I had before. I have lost sensation in my back. I am losing muscle mass and strength in my arm, coordination in my wrist. I began to wonder if I had pancreatitis, or gallstones, or something that was causing piercing mind bending pain as the back pain has made its way to my torso. Desperate, I finally made an appointment with a provider.

I just wanted the pain to stop. I could not wait to see this doctor, hoping he could help. Sadly, he looked up at me, while I was sitting awkwardly on the table, unable to rid myself of the pain.  He said he had a few patients with these presenting symptoms, and he stopped mid sentence…looked me in the eye, and looked down. It was disheartening as I heard the words I have heard so many times before. He continued, “the presenting symptoms, location of the vertebrates, nerve root compression and resulting chronic pain are not curable or treatable.  It’s rare to have spinal compression in this part of the thoracic spine, and there is not a doctor that will do such a surgery.  He added he would not even consider a nerve block, and due to the CVID/PI I cannot have the steroid shots.”

At the moment, I cannot confirm diagnosis until further tests are completed. I will have a very long MRI tomorrow, and will attempt aquatic physical therapy.

That’s a problem, I cannot get in a public pool of water, or the skin conditions I have return. Of which I am still fighting open wounds on my fingers.  What is the better of the two evils? I cannot take this pain another day, I will try the aquatic therapy and pray the pain lessons. Until then, I am  not current on my IGg due to insurance and specialty pharmacy changes. I’m putting myself at more risk of infection in this pool.

I try not to let those close to me know how horribly I hurt. How I haven’t been able to stand-up to do dishes, cook a meal, laundry, even getting up to get dressed hurts. I cannot continue to live in this amount of pain, bed ridden all the time. Its not fair to my family. The deterioration of my health, and my ill appearance. I wonder, how much does this rapid deterioration have to do with being in chronic pain all the time, and getting worse, hourly?

Hope I will be able to give an update of  a confirmed diagnosis, and prayerfully a treatment. Another chapter beginning or ending? That is the question.

What Would You Do?

pexels-photo-269141

The Gateway to the Current Health-Care Chaos: 21st Century Cures Act (#Cures)

The 21st Century Health Care Act (#Cures) was masqueraded as a Bill to advance health-care, treatment, and research into the next Century. Instead, the 21st Century Health Care Law was a chess-like maneuver spiraling America back decades. The fraud, bribery, and greed of the 21st Century Health Care Act (#Cures) voiced by Senator Warren are occurring. What is certain, is that #Cures was a purposeful manipulation of profit and politics, and patients represent the pawns.

The 21st Century Cures Act (AKA #Cures)was praised as advancing science and medicine into concise and effective developments and treatments for illnesses. Cures proponents claimed medical care and treatments would evolve to higher standards advancing into the the 21st Century. Instead, the development of the #Cures bill, now 21st Century Cures Act is the snowball that began the avalanche. Senator Elizabeth Warren (D-MA) was one of the few Senators that refused to vote for the 21st Century Cures Act (AKA #Cures).

Note: The 21st Century Cures Act is the law that was signed by President Obama. Also known, as #CURES. The 21st Century Cures Act and #Cures mean the same thing, used interchangeably. Hint: I know we all know this NOW; it is like Affordable Care Act (ACA) and Obamacare-2 names, same thing 🙂

The 21st Century Cures Act PERMITTED the health care political crisis to occur. The consistent threats to abolish American rights of access to care, treatment, and even prolonged life began by the signing of 21st Century Cures Act. As we reflect on what millions have worried about daily, their health-care, and the persons who have the power over their life and death. We can look into the provisions of Cures.

SIDE NOTE: The last amendments to the 21st Century Cures Act were presented in July 2016. There are not any recorded last minute “Bait and Switch” or “Trick” tactics. The politicians & lobbyist who did not approve of the Final Bill presented their opinions, facts, and funds to derail #Cures. Likewise, those who approved of the Bill with Amendments from 07/2016 did nothing and were aware of the last amendments. A DEATH TOLL WAS EXPECTED. See the end of this blog for a surprising opponent.

The Republican agenda, was crystal clear when they drafted Cures. One just need to remember the last 9 months and the behaviors, actions, motives, money, power, lies, and deceit just as written in #Cures. Coincidentally, 21st Century Cures Act was signed into law by President Obama in December. As a novice, upon reading (and re-reading) the #Cures law, I was able to see many discrepancies in #Cures last December as a beginner blogger (no hate for the horrid typos and structure :0) here,here, here, and here.

In November of 2016, Sen. Warren stated the blatant truth, ““I cannot vote for this bill,’’ Warren said on the Senate floor, speaking to a mostly vacant chamber.

I will fight it because I know the difference between compromise and extortion.”

Those words ring loud and clear 9 months after the passage of #Cures, and the later chaos many families have endured due to the 2017 political-healthcare climate.

21st Century Cures Act (#Cures) WILL: First giveaway – legalize fraud; Second giveaway – cover up bribery;Third giveaway – hand out dangerous, special deals to Republican campaign contributors (Senator Warren, Elizabeth). Source: HERE

Senator Warrens background as a Speech and Language Pathologist, may have her in the unique position that Washington fails the American people. Respectfully, Sen. Warren is one of the few that are educated, and understand the personal, familiar (family), medical, and unethical consequences of the #Cures Act. Unique to her peers, she is not motivated by financial lobbyists. Consider signing the Petition created by Sen. Warren on the side bar and at the end of this blog. I am aware we are WAY past November 2016 :). By circulating this information the public can gather more information about the historical beginning of the 2017 battle for health-care.

#CURES is the contrary to its namesake. The 1000 page law, is far from any cure. Most citizens expect their medications, that are effective, to treat their individualized conditions. The medications we take should come from a reliable source. After all, we are not ordering high-dollar medications from China. Right? The supposed price tag, mark up, inflation, is sometimes justified because of the valid research and pharmaceutical development followed by FDA stringent guidelines necessary prior to patient-usage. NOT.SO.WITH.CURES.

As predicted, #Cures is what has led to the current health care tug-of-war of patient lives or padding political pockets in America.

Whats wrong with the 21st Century Cures Act?

PROFIT. Warren stated her concerns with the 21st Century Cures Act in November 2016:
Legalize Fraud:Pushing treatments without scientific evidence that they work is fraud
Cover up Bribery: Drug companies keep secret gifts associated with “medical education” in exchange for prescribing specific medication
Hand out dangerous, special deals to Republican campaign contributors (i.e.,Mitch McConnell): It delivers a special deal (cellular and regenerative therapy)people can sell dangerous treatments without meeting the FDA gold standards for protecting patient safety and making sure these drugs personalized for a specific condition.

#CURES
The 21st Century Cures Act, or #Cures Set the Momentum for Current Health Care Crisis in America

Continue reading “The Gateway to the Current Health-Care Chaos: 21st Century Cures Act (#Cures)”