A Child’s Perspective of the AHCA and Becoming an Orphan

The affects #AHCA and what it is doing to our children, is cruel, inhumane, and is mortifying to the children who will be orphans.

I blog a lot about legislation, being informed, proactive, and have personally fought as much as possible to live. I am not convinced that the outcome will be as I, and many others had hoped.
What the #AHCA is doing to our children, is cruel, inhumane, and is mortifying to the children; whose parents will be left without life sustaining treatment. The fear of becoming an unwilling orphan because of the Pre-existing exclusions of the #AHCA, is a reality for children of the chronically ill.

Children who live with a chronically ill parent are different than other children. They certainly are very aware that their parents and lifestyles are different. My child confided last night that the politics scares him horribly, that the government will do horrible things to his mom.

Our home does not have TV, and is not exposed to the constant morbidity which the news would bring. We are living in a new generation, kids are exposed to a myriad of research via online. As well, my child attends school with other children whose parents are medical field professionals, of all types. The children talk. The children are terrified. The children are victims more than anyone. They are facing the reality that they will lose their parent. In my case, this is true, as without the IGg that I receive, My chances of living to see my child’s 8th grade graduation are slim.

Six months ago, the last thing we were concerned about was when my life sustaining plasma would be discontinued. We had our own way of normal. It certainly was not a constant non-stop worry about when the ax will fall. I asked my child why he didn’t tell me of his fears. Well, the stuffed animals listen to his fears and worries, and he reads the Bible. He doesn’t want to know any more bad news. Although, it looms over his head non stop. I’ve seen the withdrawal from regular playmates, the animosity of why his mom sick. The actions of how can this happen to the one he loves more than anyone, his mother.

Tonight, he came to me, laptop in hand. Said, “please listen to this mom, this is you. This song describes the USA, and what will happen” and sang it. Tears in his eyes, as I choked back my own tears. I wrote down the name of the following song titled, Sign of the Times by Harry Styles.

If your chronically Ill, you will relate to this, on many levels. I returned to tuck him into bed, and he was then reading the lyrics to the song. I had to tell him, “please don’t listen to this before bed”. As he was choking on the words. Our children, who do not in a million years deserve this agony. Our job is to protect them, comfort them, and give them as much security as humanly possible.

There are many metaphors within this piece, what strikes me, is the lyrics, “Someome whose going to die but was afraid of death whose not ready to go away”. The Sign of the Times, was debuted on 4/17, album released 5/12.
*No endorsement of the artist or song intended.

INSURANCE COMMISSIONERS: REPUBLICANS SABOTAGED THE ACA

Evidence from the Insurance Commisioners submitted to trump and the Senate 5/17/17. Proof Republicans have not paid insurers the risk corridors and sabatoged ACA by forcing insurers out of states, & forcing raised premiums. While at the same time lying to the American PUBLIC that ACA was broken, they didn’t happen to mention the ACA WAS SABATOGED by the entire REPUBLICAN PARTY, in a pre mediatated manner that will risk literally MILLIONS of lives.

The song and dance that is prevalent, republicans insisting that insurers are pulling out of the marketplace because of the failed ACA. As PREDICTED, is 100% LIES. The General public are unaware of the strategies employed by the Republicans, lobbyist, and entities that provide evidence that patient health is irrelevant when it comes to their profits. This runs deep, complex and evil, the bottom line is human health and life are a casualty as profit, is their only wicked-vision. Quite frankly, sick or healthy citizens interferes with their power, politics, and profit. As stated throughout the blog, the ACA was never fully implemented, because the Republicans, with the help of their money-backers, stopped it, with every avenue possible. When the republicans stopped the reserved funds, known as “risk corridors” These funds were reserved for insurance companies to revive from any losses, and are sitting in a reserve because the republicans refuse to pay the insurances. The republicans methodically with COMPLETE pre-mediation, froze BILLIONS of funds that were to be allocated to the insurers. The insurers, were not, and have not been paid, directly as a result of the republican sabatoge of the risk corridors.
While Republicans, ESPECIALLY PAUL RYAN, amongst many others, cry publicly how the ACA is a broken system. Screaming statements, “that insurers are pulling out of states, and rate increases”—all due to what they instigated as a system to fail, and banking on the ignorance of Americans. They knew WHY the ACA was failing–it is a direct result of EVERY REPUBLICAN and PROFIT DRIVEN Agency, THAT HAS PUT PARTY OVER PEOPLE.
The INSURANCE COMMISSIONERS sent the following letter to trump and senate….it spells the truth. If this administration does not act now to save millions, the knowledge is in front of you. READ, PRINT, SHARE, ACT- GET INVOLVED.

Evidence the Republican Party has sabotaged the ACA, withheld payments from insurance companies, forcing pullouts and raised rates

Insurance commissioners provide evidence of republicans withholding funds to sabatoge aca

letter from insurance commissioners. 1 to Trump Admin, 1 to Senate.

Subcutaneous Infusion with Immunoglobulin (IGg)

Slideshows of self administered subcutaneous immunoglobulin (IGg) infusion known as SCIG

Self administered Sub cutaneous Immunoglobulin (IGg) infusion. In no particular order.

How to video coming soon. Disclaimer: DO NOT TRY THIS AT HOME WITHOUT Prior training.

URGENT: #TRUMPCARE (AHCA) Goes Before Congress Today. URGENT To exclude maternity, hospitalization, pharmacy and more (Reconciliation). Contact Information and Script Included in Blog.

Contact your congressperson TODAY. TELL them NO on ACHA. EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization

The ACHA goes before the Congress TODAY. IT is imperative that the ACHA NOT be voted in at the congressional level. CALL and Reach your STATE REPS through all social media outlets ASAP. Trumpcare, known as the American Health Care Act (ACHA) and is a poor replacement for the American Care Act (ACA) AKA Obamacare,   I will give you quick information on making your voice heard, and summarize what the ACHA means for you below. Trump specifically told Congress that if they did NOT support the ACHA they would lose their jobs. They may be outed be Trump, but they can and will be reelected at the General Elections when voted in by the American People for STANDING up for their constituents.

How to find your State Reps: Click on the following link https://callyourrep.co/ or : HERE

Similarly, you can download the Entire Registry HERE

https://callyourrep.co/

Fill in your Address or Zip Code: Your State Reps will be populated.

Locate Your: House Representative

List of Twitter Handles for Congress: Congress Twitter Handles LIST or here: https://twitter.com/cspan/lists/members-of-congress/members

screencapture-callyourrep-co-makeacallscript-1490284129940 - Copy

A copy of  a Script:

https://callyourrep.co/callscript?id=X4h22tVQETe0GwDEBgbncnuA

Additionally, many organizations are listing direct links for one to reach your congressional reps., keep in mind email tends to end in the trash (!?). I highly encourage you to use this method of contact also, as well as reaching out via social media, and CALLING.

Primary Immune Deficient Patients (Via IDF) Action Alert:

http://primaryimmune.org/idf-advocacy-center/action-alerts/current-action-alerts-2/

The Partial List of EXCLUSIONS OF THE ACHA INCLUDE:

A few of the basic health care EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization, and the list is endless.The ACHA is far reaching, and has deadly consequences. It targets the elderly, children, those with existing illnesses, the poor, and basic health care inclusions.

 The Following Health Care Benefits NOW Covered Under ACA will be KILLED

KNOWN AS THE BYRD RULE, RECONCILIATION, ESSENTIAL HEALTH BENEFITS:

The List below states what is currently covered under federal law (ACA): This LIST IS WHAT THE HCHA WILL ELIMINATE:

Essential Health Care Benefits KILLED - Copy

Rep. Don BeyerVerified account

In a Nutshell:

cost of hca - Copy

ACHA will cause people with Preexisting Illnesses to lose access to health insurance. As usual GOP talks out of both sides of their mouth. For Example the Energy and Committee Health Chair stated:

blame-the-senate-rules - Copy

What the AHCA MEANS TO YOU (Not including the Eliminations above)

what acha means to you

If you are covered under private insurance, medicare, and don’t think these exclusions will affect you: Think AGAIN. How the Rich GAIN and the Poor and Middle Class Lose under the ACHA:

How the rich gain and the poor lose under the Republican health plan

Congress is to meet at 11:30 am today. March 23 to vote. shockingly, the majority of the R Congress do not even know what the HCHA includes. It is reported it may be through Monday, Reach out and tell them your concerns.

URGENT: #TRUMPCARE Goes Before Congress Today. URGENT Contact Your State Reps. Exluding: Medicare, Prescriptions, Hospitalization, etc., (Reconciliation) Contact Information and Script Included in Blog

Contact your congressperson TODAY. TELL them NO on ACHA. EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization

The ACHA goes before the Congress TODAY. IT is imperative that the ACHA NOT be voted in at the congressional level. CALL and Reach your STATE REPS through all social media outlets ASAP. Trumpcare, known as the American Health Care Act (ACHA) and is a poor replacement for the American Care Act (ACA) AKA Obamacare,   I will give you quick information on making your voice heard, and summarize what the ACHA means for you below. Trump specifically told Congress that if they did NOT support the ACHA they would lose their jobs. They may be outed be Trump, but they can and will be reelected at the General Elections when voted in by the American People for STANDING up for their constituents.

How to find your State Reps: Click on the following link https://callyourrep.co/ or : HERE

Similarly, you can download the Entire Registry HERE

https://callyourrep.co/
Locate your State Reps

Fill in your Address or Zip Code: Your State Reps will be populated.

Locate Your: House Representative

 

List of Twitter Handles for Congress: Congress Twitter Handles LIST or here: https://twitter.com/cspan/lists/members-of-congress/members

screencapture-callyourrep-co-makeacallscript-1490284129940 - Copy

 

A copy of  a Script:

https://callyourrep.co/callscript?id=X4h22tVQETe0GwDEBgbncnuA

 

Additionally, many organizations are listing direct links for one to reach your congressional reps., keep in mind email tends to end in the trash (!?). I highly encourage you to use this method of contact also, as well as reaching out via social media, and CALLING.

Primary Immune Deficient Patients (Via IDF) Action Alert:

http://primaryimmune.org/idf-advocacy-center/action-alerts/current-action-alerts-2/

The Partial List of EXCLUSIONS OF THE ACHA INCLUDE:

A few of the basic health care EXCLUSIONS will include: PREGNANCY, Maternity, Newborn Care, Mental Health, PRESCRIPTION DRUGS, Hospitalization, and the list is endless.The ACHA is far reaching, and has deadly consequences. It targets the elderly, children, those with existing illnesses, the poor, and basic health care inclusions.

 The Following Health Care Benefits NOW Covered Under ACA will be KILLED

KNOWN AS THE BYRD RULE, RECONCILIATION, ESSENTIAL HEALTH BENEFITS:

The List below states what is currently covered under federal law (ACA): This LIST IS WHAT THE HCHA WILL ELIMINATE:

Essential Health Care Benefits KILLED - Copy
@RepDonBeyer Representative Don Beyer

Rep. Don BeyerVerified account

In a Nutshell:

cost of hca - Copy

ACHA will cause people with Preexisting Illnesses to lose access to health insurance. As usual GOP talks out of both sides of their mouth. For Example the Energy and Committee Health Chair stated:

blame-the-senate-rules - Copy

What the AHCA MEANS TO YOU (Not including the Eliminations above)

what acha means to you

If you are covered under private insurance, medicare, and don’t think these exclusions will affect you: Think AGAIN. How the Rich GAIN and the Poor and Middle Class Lose under the ACHA:

How the rich gain and the poor lose under the Republican health plan

Congress is to meet at 11:30 am today. March 23 to vote. shockingly, the majority of the R Congress do not even know what the HCHA includes. It is reported it may be through Monday, Reach out and tell them your concerns.