Every Patient Needs to Know: Patient Privacy is Profit. The Red Flags of Betrayal

Would you give a stranger your address? What about your Social Security Number? Probably not. Why are you giving away your Private Health Information? Chronically Ill patients are Cash in the bank. READ ON; Every patient with a chronic illness needs to know the dangers of volunteering your medical information. It’s more than a bank account they steal, it’s your life, literally. Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients. the Vertice (of the triangle) preys on the desperation of the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded manner. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the individual with a rare and terminal disease. They methodically extract the information- they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t ADMINISTER and stalk groups! The same for ⬇️.

WHAT? Yes, what you viewed is not a cruel joke. Read On:

Add the following to your toolbox of self-advocacy:
Identity thieves are not the only evil bunch that manipulate, destroy, and steal from you. There is a “white-collar” industry that profits trillions of $$ by preying on vulnerable patients.

Technically, HIPPAs Privacy Rule, created national standards for protection of Individually Identifiable Health Information Health(PHI). The Security’s Rule is established as a national set of security standards in how records are stored and/or transferred, the Electronic Protected Health Information (e-PHI). Which in theory HIPPA should protect patients from sharing any of their personally identifiable records being released. In THEORY.

HIPPA specifically states that health information cannot be released without written consent to a physician to use or share your information for marketing or advertising purposes. The catch?
How are these entities able to trade/sell your names/diagnosis/treatments with the pharmaceutical companies that manufacture your life sustaining meds for a boatload of money? Worse? They get WEALTHY & POWERFUL. They own a good part of WASHINGTON (vertices 3).

It’s VERY EASY. They self proclaim that they are not a mandated “COVERED ENTITY” for HIPPA Compliance. Easy enough, and that is what they do. Under the e-PHI/PHI, if a patient volunteers verbally, or written form health related information (DX,MEDS, DOCS, NAME, Address)…..that is a-o-k. Not a violation of HIPPA. 1) They self proclaim they are not a “covered entity” & therefore not held to HIPPA Law. 2) They let the patient volunteer their private health information (under false pretenses) and a lot of psychology.
WHY are so many vulnerable patients willing do this? 3)As stated, they use methodical pre-mediated psychological mind games. In this case, it’s called the Reprococity Norm or even, The Foot in the Door. Simple speak: An expectation that if they do something for you, you will do something for them. In this case, (there are several examples) they buy you lunch at a meeting, you complete the survey or paperwork with private and medical information. Foot in the door is basically the same, they do something nice for you and expect a larger request from them to be honored by the patient.

4)Back to the information gathered: The PHI, patient information, medical diagnosis, treatment, care, life-sustaining medications, physicians, records, labs, are obtained in a sadistic way.
Albeit, not illegal, unless the office of Civil Affairs, Attorney Generals, and the IRS decide to audit their real activities. Since that’s not probable the Vertice (of the triangle) preys on desperation the chronically ill. The HIPPA protected records are gathered in a pre-meditated, manipulative and underhanded way. Using human sociology and psychology weaknesses of the chronically ill. Gaining trust, and using tactics strategically calculated to engage the person with a rare and terminal disease. They methodically extract the information they only need one piece, but MANY patients offer more.Social media is their friend. Don’t think they don’t administer and stalk groups! Posing as Patients, because they do. The same for ⬇️.

5) The second vertices throws in the statistical analysis/manufacturing/economics from the information gathered by vertices 1. If your following me, it’s the pharmaceutical industries that manufacture the life saving medications of the patient. The millions (or trillions) of tax-free dollars and/or taxable deductions, depending on which one gets the cash and which one “donates” occurs.

6. Finally, can’t fool you here ;( throwing (LOTS) of money at politicians, to write legislation that continues this cycle. Only now….we are heading into a viscous era with the development biosimilars and stem cell development and manufacturing. Have to applaud the 700+ organizations that supported CURES, NOT, and the complete lax in FDA oversight.

How are they doing this?
Easily, the in-between gains the trust (released from any HIPPA violation) of chronically ill patients, at the same time being protected by a 501(c) status. Therefore, the “gifts” are tax-free to boot. We don’t really KNOW how much cash is exchanged, millions, trillions? IT SURE IS TAX FREE.

Patients are not aware of the strategies used. Many desperate patients prefer to look the other way (see psychological examples), plain don’t know, or more than likely truly believe in the “only” agency that “advocates” for them (*Psychological explanations: Conformity; Social Loafing, Deindividuation, Group Polarization, In group Bias, Status Quo and Status Quo Bias).
>Until the day comes and their no longer profitable to the triangle of the powers. That in fact, alienate them. Then they die. No questions asked. New patients are diagnosed. Wash. Rinse. Repeat.
***The cycle continues, and has, for at least 3 decades, possibly longer.

**What you can do to Protect Yourself (Advocate)
Recognize the red flags. Understand the purpose. Regain your HIPPA rights. You, WE, are not someone’s profit. WE are people with many diagnoses’. We live our battles everyday, we are NOT their blood money.

Rescind all previous permissions given for ANY records, paper and on any electronic database. Demand immediate deletion and shredding. Certified mail, fax, email. Are you registered with the NIH? Rethink that, as it stands it’s not a wise decision to have your healthcare records in a governmental agency, with # Cures now law.
Re-evaluate the rules you went through to become a member of any group, NFP or Social Media, ANY one. Never put in writing or verbally the specific private health related information mentioned above. On paper, mislead, or put NA for dx, doctors, meds. Don’t open ANY email from these groups– your email is traceable down to the GPS. Review the ways blogged here. Review the video above for legitimate organization features (Instagram pipunited). Research the org /agency of choice, have they really supported their patient population with legislation? Review their lobbying and bills opposed or supported. Stay tuned, I will address details in-depth to help you decide by advocating who really supports the Patients in your field of Chronic Illness.

I know it’s not believed as the truth, but every one of the patients they use to increase their bank accounts, should be aware of how much power they have given these people over their own mortality.

√I don’t know about you, but my physical struggling will not be capitalized on for greed.

Cliffhanger: There is a major 4th “vertices” to add to this “TRIOLOGY”. This entity and the “Profit NOT Patients”will be made public at a later date. Onward to our one Year Anniversary celebration!
Make sure to subscribe,you don’t want to miss it!

~~I hope this helps someone.
❤️PIPPY

Knowledge Empowers

10-Minute Baked Potatoes

Chronically Cooking hack. Baked Garlic Potatoes in 10 Minutes, or a tad more depending on the day. The tricks we learn, despite our illness, to feed the family, easily. If you would like to share, kindly trackback to https://www.primaryimmunepatientsunited.com

Baked Potato Hack: Baked Garlic Potatoes in 10 Minutes, or a tad more depending on the day. The tricks we learn, despite our illness, to feed the family, easily.

10 Minute Baked Potatoes from Pip United on Vimeo.

Sharing? No problem! This site needs to GROW! Please mention and link back to Primary Immune Patients United

Hungry for more? Click HERE

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A Child’s Perspective of the AHCA and Becoming an Orphan

The affects #AHCA and what it is doing to our children, is cruel, inhumane, and is mortifying to the children who will be orphans.

I blog a lot about legislation, being informed, proactive, and have personally fought as much as possible to live. I am not convinced that the outcome will be as I, and many others had hoped.
What the #AHCA is doing to our children, is cruel, inhumane, and is mortifying to the children; whose parents will be left without life sustaining treatment. The fear of becoming an unwilling orphan because of the Pre-existing exclusions of the #AHCA, is a reality for children of the chronically ill.

Children who live with a chronically ill parent are different than other children. They certainly are very aware that their parents and lifestyles are different. My child confided last night that the politics scares him horribly, that the government will do horrible things to his mom.

Our home does not have TV, and is not exposed to the constant morbidity which the news would bring. We are living in a new generation, kids are exposed to a myriad of research via online. As well, my child attends school with other children whose parents are medical field professionals, of all types. The children talk. The children are terrified. The children are victims more than anyone. They are facing the reality that they will lose their parent. In my case, this is true, as without the IGg that I receive, My chances of living to see my child’s 8th grade graduation are slim.

Six months ago, the last thing we were concerned about was when my life sustaining plasma would be discontinued. We had our own way of normal. It certainly was not a constant non-stop worry about when the ax will fall. I asked my child why he didn’t tell me of his fears. Well, the stuffed animals listen to his fears and worries, and he reads the Bible. He doesn’t want to know any more bad news. Although, it looms over his head non stop. I’ve seen the withdrawal from regular playmates, the animosity of why his mom sick. The actions of how can this happen to the one he loves more than anyone, his mother.

Tonight, he came to me, laptop in hand. Said, “please listen to this mom, this is you. This song describes the USA, and what will happen” and sang it. Tears in his eyes, as I choked back my own tears. I wrote down the name of the following song titled, Sign of the Times by Harry Styles.

If your chronically Ill, you will relate to this, on many levels. I returned to tuck him into bed, and he was then reading the lyrics to the song. I had to tell him, “please don’t listen to this before bed”. As he was choking on the words. Our children, who do not in a million years deserve this agony. Our job is to protect them, comfort them, and give them as much security as humanly possible.

There are many metaphors within this piece, what strikes me, is the lyrics, “Someome whose going to die but was afraid of death whose not ready to go away”. The Sign of the Times, was debuted on 4/17, album released 5/12.
*No endorsement of the artist or song intended.

David Vetter’s Sacrifice

A conversation about David Vetter between his mother, Carol Ann Demaret, and his pediatric immunologist, Dr. William Shearer (SCIDs)

The Legacy Of The ‘Boy In The Bubble,’ One Of Houston’s Most Famous Patients

Attribution:
https://www.houstonpublicmedia.org/
Carrie Feibel; Originally Posted ON MAY 17, 2016

“Fake weed” taints plasma supply next epidemic

Over 100 overdoses this week from K2 (fake weed). Known addict donates plasma the same day.

what does this synthetic week do to the human body, besides KILL it? Watch the recent video:

Dangers of toxity of synthetic drugs for Patiets

yes, it’s true,  its deadly, drug test cannot pick up on the constantly changing chemicals and how and what is being done to protect the patients? After the known abuser donated plaama (obviously high); he went and bought more fake weed withnthe donation money, my estranged daughter overdosed on the fake weed.

this issue is NOT  being addressed by the FDA, blood or plasma centers, manufacturers,  write, email, call….we patients need a solution IMMEDIATELY

#pi_united

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