21st Century #Cures Impact- continues to impact infusion patients. Does not look like an appeal will occur (realizing AHCA is now at forefront, my concerns, fears, shock, and personal turmoil looms). I began a mission because of #cures, to inform patients to be knowledgeable and proactive based on fact . To the best of my abilities, took risk others refused, lost my own community, because I tried to help. I am a patient too. I’m struggling, afraid, and depressed. The update on Cures: http://newyork.cbslocal.com/2017/03/27/heart-patient-infusion-costs/
Full Text of CURES: HERE
Something about #Cures is earily related to the current crisis with health-care in America. There may be, yet again, a false sense of security if your on Medicare. Those on Medicare and receive any type of immunoglobulin replacement therapy, #Cures is still law, and patients have not dodged the AHCA reform act.
As I went to check on my child, and say good night. He read the following to me:
The tongue of the wise uses knowledge wisely, but the mouth of the fools pours forth foolishness. –Proverbs 15:2
This scripture certainly nails the entire situation that has evolved, beginning with my awakening to the truth. As I read a few verses further:
A wholesome tongue is a spirit of life. But perseverance in it breaks the spirit. –Proverbs 15:4
In other words, A gentle tounge with its healing power is a tree of life, but willful contrariness in it breaks down the spirit. The Amplified Bible
Having spent hours researching, reviewing, and reflecting; my perseverance is walking a thin, invisible line that is either leading somewhere or nowhere. The loss of #Cures, was the beginning of many losses that the chronically ill will witness. I cannot begin to explain, how millions will be affected. To be honest, since Thursday, our house has been utterly quiet, a sadness and sense of helplessness and dispair. I hear and read to often:
Or similar but…
Upon first read, yes. Seems simple enough. Then, I ponder. If one gives into whats happening and does nothing. What will the outcome be? Thats the difference, you challenge yourself not to accept what is out of your control, and idly shrug it off. Instead, what are the other options to circumvent, or change the direction in your destiny that we are powerless to?
The absolute truth is not what I want to believe, not what anyone wants to believe. And, like #Cures, what everyone refused to believe, and its happening.
Attribution: The 700 Groups That Supported the 21st Century Act: https://energycommerce.house.gov/news/press-release/over-700-groups-stand-behind-cures2015/